I'm awake since 2:45am...

I think I've forgotten to mention in the past that not only have I been feeling better, but I've also been able to sleep & my muscle twitches have pretty much subsided. I'm still in pain at the end of the day from not laying around, but I'll take it.

But no sleep tonight :( Went to sleep around 11:30pm, woke up an hour later (can't remember why) & then woke up again at 2:45am. I took an ativan at 3am but I'm still awake. And now I'm upset because I woke up hubs for some emotional support (I rarely disturb him) because I have a weird sore throat & headache, & my eyes ache/burn. When I can't sleep because I'm not feeling good, it really bothers me. I should just pray. But I need to get on my knees to be able to concentrate enough and it's too freaking cold in this room.

I got up & went into the office to lay on the futon with a little pillow, little blanket, & my little chihuahua to keep me warm. I guess my sniffling & looking at Facebook on my phone was bothering the husband. He didn't take too kindly to me waking him up. So I came in here. Brrrr... I'm not tall enough or strong enough to shut this giant window.
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I just don't get it.

I'm still doing well.  And functioning with little symtoms.  I'm going to the beach tomorrow for heaven's sake!

Yesterday two of my nieces came to visit me.  YAY!  The eldest is going to school about an hour from me & she was up in the Bay Area for spring break & brought my youngest (from my sister) down to visit for her spring break.  She will be leaving Friday & going to my parents who will take her to the airport on Saturday early to fly back to the Bay.  It was so good to see them.  We all went to dinner & then they both spent the night.  I slept in too late to see the eldest leave to go back to her apartment.  *Sigh*  It's nice to have them around.  And since I am not feeling too badly, and the sun is shining, hopefully hubs & I will be able to take my niece to the beach.  It supposed to warm up to the 80's here on Wednesday which means 70's at the beach!  So now I must do the pile of dishes in the sink, eat breakfast, take a bunch of supplements and go for a walk in this sunshine!  It was rainy & gloomy yesterday. 

Oh quick little story.  My niece wanted to give me my B12 shot last night and I said ok, since it's only a little insulin needle in my belly.  Well, she says, "Auntie, I don't want to hurt you!!"  She was nervous, she stuck it in, & immediately pulled it right out.  We laughed so hard!  So I ended up sticking it back in & let her push on the plunger.  You had to be there.  It was funny!

Something strange is going on here. . .

So I had 14 glorious days straight of feeling "good" (my last record was 10 consecutive days) and the last two of those days were almost like not having this stupid disease at all.  I even exercised a bit on my mini-tramp.  Then BAM!  My "Aunt Rosie" came to visit and if you are a woman with lyme you know what happens, within a couple of days you are sick again.  Classic lyme cycle.  So I was sick one day and then felt really bad the next (yesterday).  Decided to take an 800mg Motrin to see if would do anything because it was Easter & I wanted to go to my sis-in-law's new pad for a BBQ.  If I'm sick over there, I can just lay on the couch & be sick, no big deal.  But the Motrin actually did something.  Took my flu-ish/hangover feelings away.  Not completely, but I was definately not miserable, and even though I layed on the couch, I had a good time.  So the Motrin totally helped (never worked before), but it left me with my stomach all jacked up for the rest of the day.  Hmmmm.... maybe I'm onto something.  Take 800mg Motrin every day??  But what about my liver?  And the fact that I am on high dose antibiotics?  Then today, I'm sick, but nothing close to what I am used to.  NOTHING.  I babysat a 1 year old for 2 hours (jacked up my back doing so), AND I managed to clean out & organize my pantry.  On a SICK day!!  Okay.  My good days keep getting "good-er" (yes, I know that's not truly a word) and my bad days are getting "good-er".

Maybe I'm getting GOOD-er!!!!!!!!  (Oh ya, I've blown my whole gluten free, sugar free diet again).  Unless I notice any issues, I'm staying this way.  It's easier to eat.

Goofing off in between takes for the Lyme PSA

Wow!  Yesterday was a great day.  I met some great people and had a great time.  We worked our tails off for 7 1/2 hours and it was a long day, but so worth it.  Can't wait to see what happens in the end.  May is Lyme Awareness Month & we've got to do our part to spread awareness.  Please go to Lymenaide and see what you can do to help the cause!!

Thanks Ashley, Nani, & Z.S. for being so helpful & patient with me yesterday.  It was such a great time and I have been having so many good days.  Today is day 14 in a row!!  xoxo

A video of me getting ready for my bicillin injection

On vacation from Lyme Disease

I have been taking some time off from having Lyme Disease.  Oh, you didn't know you could do that?  Ya, I'm on vacation from Lyme Disease.  Okay, okay, it's not like I planned it.  I have just been having good days.  Yesterday was my 11th good day in a row.  JEALOUS?  Well if you have Lyme Disease, maybe you are.  :)  So today is day 12 & so far I feel just fine.  My legs are weak & achy, but hey, you get what you get and I'll take it as long as I don't have to be in bed all day. 

Anyway, I have been feeling good & living.  My parents came and put in the rest of the garden.  YAY!!  And they are coming back again next Saturday to finish off the watering system.  If and when I ever move I can just move the garden with me.  It's brilliant!!  I have done tons of laundry, gone grocery shopping with the fam & made my kitchen sparkle.

I am shooting an interview for a Lyme Disease public service announcement.  May is Lyme Awareness Month.  I am so happy to be involved you have no idea.  It makes me feel like I am actually DOING something.  They will be here to shoot some time around the 1st.  YAY!  Here is the link.  You can help too:  Lymenaide

Oh and P.S.  My blood work is being sent to Igenex today for my Western Blot panel.  PLEASE pray for a positive.  Please. . . .  I'm nervous and these next 2 weeks are going to drag.

An open letter to Ben Stiller & David Letterman

Please click on the link below:
Open letter to Ben Stiller & David Letterman about Lyme Disease