Saturday, October 29, 2011

Juggling Medications

I've been sick in bed or on the couch (mostly bed) for the past 2 1/2 weeks.  I crashed after my nieces came to visit me.  It was so great to see them and meet my new nephew.  I am not sure if I over did it preparing and then accommodating guests or what but I haven't had a "good" day since.  When I go for a long time with no good days to break up the bad, I get down and my positivity goes out the window.  I start to feel hopeless.  The light at the end of the tunnel has gone out.  I am questioning my treatment and what my future holds.  I am wondering if I will ever recover or if doctors will ever find the "key" to what is keeping me from getting better.

I decided to be more proactive.  I've done this before.  It is so HARD to take oral meds on time and eat properly, etc. when you are sick.  When your husband is working at maximum capacity just to make ends meet.  So I am going to have my friend make me a spread sheet for my meds and supplements.  I no longer take a lot of supplements as it's too difficult and expensive.  A lot of supplements and medications must be taken on either an empty stomach, with food, away from each other, etc.  I am trying to work out a schedule to get this together.  Any suggestions anyone has would be GREATLY appreciated.  Here is what I am juggling with my oral medications:

Doxycycline (antibiotic, 2 times daily, empty stomach)
Activated charcoal (once daily, detoxifies, away from everything!)
Nystatin (anti fungal, to be taken away from all of the above, 3 times daily with meals)
Probiotic (twice daily before meals taken 2 hours away from all of the above)
Living Waters Probiotic (I take it at same time as regular probiotic)
Chlorella (3 times daily with meals can be taken with probiotic but at least 2 hours away from anti fungal & antibiotic and activated charcoal)
Corvalen (twice daily with meals, doesn't matter what it's taken with)
Vitamin C powder (mix it with the Corvalen?)
Vitamin D3 drops (once daily away from doxy)
Vitamin A (once daily, away from doxy)
Milk Thistle (up to 3 times daily)

Wednesday, October 12, 2011

I'm Back

I have been away from my blog (and the rest of the online world) for the past 2 months because I didn't have access to internet at home.  But we finally gave in as my husband needs it for work and the kids need it for school.  I was also going a little nuts being housebound with no cable or internet.

I am so glad to be back.

An Update
I have been doing well health wise.  Still on IV Rocephin and taking the oral doxycycline DR.  My doctor wanted me to stop the doxy and go on rifampin (my stomach cannot handle doxy and alinia together and the alinia seems to be key to my treatment).  Within 4 days of being off the doxy, I went downhill.  Fast.  I got permission to start up the doxy again.  I need to get to make the trip to the doctor again to see if I can add the rifampin to the doxy but I need to wait.

I have my disability hearing on October 18th.  It's about a 45 minute drive.  I am VERY nervous.  They will have a vocational expert testifying against me.  Interesting.....  I don't know.  I am pretty scared.  My anxiety has kicked in.  I have been denied twice and this is the last chance.  It would make a world of difference for me to be accepted.  For myself and my family.

Loss of Love
On a sad note.  A little over a week ago, I was transferring my bird from my indoor cage into his outdoor cage for outside time and a garbage truck spooked him and he flew away.  It then stormed for 3 days straight.  My husband made me a bed outside and I laid in the rain for hours that day hoping he would make an appearance.  My beloved bird never made it home....  I was devastated and mourned the loss of that precious creature.