Okay, this was the first try. Sorry for the F Bomb. But if you find blood, & you inject or forget to aspirate, it can kill you. Means you are in a vein.
Thursday, May 27, 2010
My laptop has been down . ..
Well, my husband broke the hard drive in my laptop yet again so I have been without one for over a month. I haven't been feeling so great, so I haven't been on the computer much. That would explain my absence from my blog.
A recap of the past couple of weeks:
Got sick about 4 days before the fundraiser/awareness walk so I couldn't make it. My husband & his family & a couple of friends went anyway. My dad was out of town visiting his mother & I was feeling so sick that I had my mom come here to take care of me instead of going to the walk. Nicest part of the walk was one of my BFF's learned a lot about Lyme Disease and I think that helped her to understand me more.
I never heard from the walks coordinator after that, so I didn't get any help with my fundraising. Oh well, you win some, you lose some.
So I ended up spending 8 days in bed. That miserable hangover feeling. It sucked. And then we had the garage sale on Saturday. I started to feel better a few days before & on that day I did well. We made $537! It was enough to pay for a month of one of my antibiotics. I need to figure out more fundraisers though because I need many thousands of dollars!! Doing another garage sale this weekend. Not as much stuff, but I am hoping some how some people will donate more stuff by tomorrow.
True2Life donated one of their 8 Day Liver Detox Kits to me. That's cool! I felt great after my last detox. I was going to start today but started having pain in my lower right abdomen. Could be my appendix, so I am holding off on the liver cleanse until pain is gone. Appendix is attached to your large intestine & this cleanse on the 2nd day brings on a lot of bowel movement. So . . .. we wait a bit.
I went to see my doc 2 days ago in his Beverly Hills office. I like him. He's not my LLMD, but he takes my insurance. He's keeping me on Bicillin & adding Biaxin for Mycoplasma. Doing a week trial run to make sure it doesn't cause tinnitus like zithromax did. The tinnitus showed up after 2 days on Zithro & stopped after I stopped the medication (3 days later). It can be permanent & it was very unpleasant. I forgot to talk to him about how to treat the Q Fever which can become chronic also. Doxy? UGH! I couldn't take that. Make me drop weight like a wrestler or a super model.
So we are waiting and seeing. I am happy to be attacking my known co-infections now. Maybe this is the boost I need. Cross your fingers that I can tolerate it. Doc also took some blood work because I have been having abdominal pain & he said I should be having monthly blood draws. I will go to him monthly, which is fine because my insurance pays for it. It's a long drive, but we're going to stick with going to his Malibu office so we can see the ocean at least. It's lovely.
I am happy to report that my Malibu/BevHills doc was able to find me lower cost Bicillin! YAY! I was paying $700 for 10 injections at McGuff. I am now paying $525 for 10 with free overnight delivery via courier to my door! WestAid Pharmacy in LA. The Biaxin was going to cost me $269 at Walgreens but is only $60 at WestAid! Here is their number if you ever want to price them 1-800-939-9495
I hope everyone is doing well. HANG IN THERE!! My headaches are NOT my friend!
A recap of the past couple of weeks:
Got sick about 4 days before the fundraiser/awareness walk so I couldn't make it. My husband & his family & a couple of friends went anyway. My dad was out of town visiting his mother & I was feeling so sick that I had my mom come here to take care of me instead of going to the walk. Nicest part of the walk was one of my BFF's learned a lot about Lyme Disease and I think that helped her to understand me more.
I never heard from the walks coordinator after that, so I didn't get any help with my fundraising. Oh well, you win some, you lose some.
So I ended up spending 8 days in bed. That miserable hangover feeling. It sucked. And then we had the garage sale on Saturday. I started to feel better a few days before & on that day I did well. We made $537! It was enough to pay for a month of one of my antibiotics. I need to figure out more fundraisers though because I need many thousands of dollars!! Doing another garage sale this weekend. Not as much stuff, but I am hoping some how some people will donate more stuff by tomorrow.
True2Life donated one of their 8 Day Liver Detox Kits to me. That's cool! I felt great after my last detox. I was going to start today but started having pain in my lower right abdomen. Could be my appendix, so I am holding off on the liver cleanse until pain is gone. Appendix is attached to your large intestine & this cleanse on the 2nd day brings on a lot of bowel movement. So . . .. we wait a bit.
I went to see my doc 2 days ago in his Beverly Hills office. I like him. He's not my LLMD, but he takes my insurance. He's keeping me on Bicillin & adding Biaxin for Mycoplasma. Doing a week trial run to make sure it doesn't cause tinnitus like zithromax did. The tinnitus showed up after 2 days on Zithro & stopped after I stopped the medication (3 days later). It can be permanent & it was very unpleasant. I forgot to talk to him about how to treat the Q Fever which can become chronic also. Doxy? UGH! I couldn't take that. Make me drop weight like a wrestler or a super model.
So we are waiting and seeing. I am happy to be attacking my known co-infections now. Maybe this is the boost I need. Cross your fingers that I can tolerate it. Doc also took some blood work because I have been having abdominal pain & he said I should be having monthly blood draws. I will go to him monthly, which is fine because my insurance pays for it. It's a long drive, but we're going to stick with going to his Malibu office so we can see the ocean at least. It's lovely.
I am happy to report that my Malibu/BevHills doc was able to find me lower cost Bicillin! YAY! I was paying $700 for 10 injections at McGuff. I am now paying $525 for 10 with free overnight delivery via courier to my door! WestAid Pharmacy in LA. The Biaxin was going to cost me $269 at Walgreens but is only $60 at WestAid! Here is their number if you ever want to price them 1-800-939-9495
I hope everyone is doing well. HANG IN THERE!! My headaches are NOT my friend!
Saturday, May 8, 2010
Living
I have been doing so well. So well in fact that my chief complaints are only sleepiness & muscle weakness. I am still worn down at the end of the night & if I do too much. But I'm getting there.
Thank you detox
Thank you Nuriche
Thank you Bicillin
Thank you Dr. B
Thank you Dr. P
Thank you hubs (even though you are a pain in my butt sometimes)
Thank you mom
Thank you to all my supportive friends on Facebook & here on online outer space
Thank you to everyone who told me not to give up
(all in no particular order, just what came to mind)
Now I need to raise money to treat Q Fever, Mycoplasma, Babesia & any other bastards that are trying to kill me.
May is Lyme Disease Awareness Month
We are doing a fundraiser/awareness walk up in Hesperia, CA on May 15th to raise money for myself and a few other "lymeheads" (someone on Facebook gave me that term & I cannot remember who).
I am doing a huge garage sale & asking friends, family & friends of friends to donate items to sell that will happen March 22nd.
My friend Leslie says she will help me to plan a poker party fundraiser. Now that sounds like fun!
And the grand finally. .. . . . . a big huge NATIONWIDE RALLY for Lyme Disease. Date TBA. If you are interested in organizing in your area, please let me know! This is very important & no matter how sick you are, we need your support. Get your friends, you family, your co-workers, your neighbors in on it.
xoxo! To life!!!! Cheers.
Thank you detox
Thank you Nuriche
Thank you Bicillin
Thank you Dr. B
Thank you Dr. P
Thank you hubs (even though you are a pain in my butt sometimes)
Thank you mom
Thank you to all my supportive friends on Facebook & here on online outer space
Thank you to everyone who told me not to give up
(all in no particular order, just what came to mind)
Now I need to raise money to treat Q Fever, Mycoplasma, Babesia & any other bastards that are trying to kill me.
May is Lyme Disease Awareness Month
We are doing a fundraiser/awareness walk up in Hesperia, CA on May 15th to raise money for myself and a few other "lymeheads" (someone on Facebook gave me that term & I cannot remember who).
I am doing a huge garage sale & asking friends, family & friends of friends to donate items to sell that will happen March 22nd.
My friend Leslie says she will help me to plan a poker party fundraiser. Now that sounds like fun!
And the grand finally. .. . . . . a big huge NATIONWIDE RALLY for Lyme Disease. Date TBA. If you are interested in organizing in your area, please let me know! This is very important & no matter how sick you are, we need your support. Get your friends, you family, your co-workers, your neighbors in on it.
xoxo! To life!!!! Cheers.
Tuesday, May 4, 2010
Saturday, May 1, 2010
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