This blog used to be titled Sonya Fights Lyme. But I am no longer "fighting" Lyme disease. I am pushing forward, no longer a victim, no longer angry, no longer searching. I still have symptoms, but I am not letting them destroy me.
I would love to get off of antibiotics. I am not getting better. I feel as though I am getting worse.
I have managed to fund raise a bit so I had some money & I had to choose. Should I get the bags of sodium chloride (minimum $135) for my IV rocephin or should I get the herbal treatment that many people say helped them more than antibiotics? I don't feel as though I am getting better being just on rocephin & oral biaxin so.....
Great video a Twitter friend made. She shared it with me but I was unable to "embed" it and share it with you! Now I can. Please watch it. Share it with your friends & family. Let's do our best to kick off May Lyme Awareness Month!!!! Let's change things NOW! And let's learn to understand each other. Great job Croneslesbo!!
This past month has been very hard on me emotionally. I am getting close to 2 years in treatment & being sick. I have been getting worse. I KNOW in my gut it is because I have co-infections that are not being treated. My CD 57 is high & has been high for a year, yet I am not improving. This HAS to be co-infections. My doctor won't treat me for Bartonella, which I suspect & have symptoms of. I asked for Rifampin after Burrascano's last talk. Rifampin treats Bartonella & it may also act as a cyst buster. So a double whammy for me! I can't take traditional cyst busters (flagyl or tinidazole) due to an allergy. I was very disappointed at my last appointment.
Right now I know of 3 fundraisers going on to help the victims of Lyme Disease. One is myself, one is someone I know, and one is someone named Elizabeth. Please go to all 3 of these websites, read our stories and see what you can do to help. It doesn't always take money!
There will be an online auction, and many other great things! Please check it out!
Supporters can also help by.... Do you shop on Amazon? You can help me raise money while you shop at no extra cost to you. Please use this link whenever you shop on Amazon & you will be helping me raise treatment funds at no cost to you (I get a small percentage of every purchase made). http://tinyurl.com/AmazonSonya
In addition, I also am a Independent Consultant for Thirty-One Gifts. Great products for every body. Please check out my website at http://www.mythirtyone.com/SonyaNelson and click on view catalog to see what this great company has to offer.
And one more thing before you go... Please watch the documentary Under Our Skin . There in lies the truth about Lyme Disease. There is a big IDSA cover up going on about this disease and it's the reason we don't get proper treatment.
Okay Lyme Friends. After much digging & scouring the internet, I finally found the actual protocol. This is the most recent protocol version (dated) 02.23.11 I posted it to my Lyme Store last night. I am investigating both Cowden & Byron White. Leaning more towards Byron White, however I hear great things about a couple of the Cowden Herbs. Particularly the
Since I got out of the hospital, I still have yet to get back on all my medications & supplements. My nightly ritual of taking Lauricidin stopped. I was up to something like 35 pellets a night. Nearly half a scoop. So it's been over a month.
My friends & I started an online book club on Facebook. If you are on Facebook & would like to join, please do so! This is a non-lyme group, however we have a lot of "LymeHeads" in the group as of now (it's still new). Here is the link to the group:
This was really fun to do and all the people were wonderful. It was nice to see Nani & Ashley (of Lymenaide) & Z.S. again. This is where I met Bev Feldman (author of Lyme Sucks), she was operating the teleprompter.
There are a lot more videos from several celebrities that Ashley wrangled up. You can go to Lymenaide's YouTube page to view more. I just kept getting lost.
I just added a tab to the top of the page that shows my current protocol. It's not a very good protocol and I plan to change things up. I wish I had help. That is all I am taking right this second. Not even taking supplements. I will start all my supplements up again. I have been really down in the dumps & not caring and almost in "giving up" mode. I am sick of the struggle. I am sick of being alone I am sick of feeling like I am going crazy.
Helping people makes me feel better. It's my job....
Oh ya, I am in need of IV Administration sets (tubing). If anyone has any that they do not need, will you please let me know? Thank you!
This is my bed today. Got a shipment of Rocephin that I will start tomorrow. Started clipping coupons, but can't really buy anything anyway, so what's the point? Here is the laptop I sit on all day/night. If I'm not sick, I'm out enjoying the day or at the library. Oh ya and some medical bills from the ER that somehow slipped through insurance billing. Hope I remember to call them with my insurance info. What you can barely see on the right is my sauna that I meant to sit in today. And you can't see my IV pole. It's ugly. I should decorate it! Any suggestions?
Hate being sick. I mean, I'm always sick, but I hate being THIS sick. Makes me all negative and crappy. -Hopeless
I spent the evening and night two nights ago puking my brains out. It started out much worse though. I was in a lot of pain that day felt horrible (lyme cycle, day 1). I took my usual swallow of pills, Biaxin (antibiotic), GalaChrom (supplement), Lithium Orotate (supplement for mood and to protect brain cells), and Milk Thistle (Liver/detox). I take them together all the time. People say Biaxin is hard on their stomachs, but I have never had a problem popping it on an empty stomach. I ate a greek yogurt and about an hour before.
Oh Lyme Cycle, how do I love thee? Let me count the ways....
I love how you make my head & neck hurt
I love how you make my body ache
I love how you make my face squish up like an old woman
I love how you make it so I can't fend for myself
I love how you make me dizzy
I love how you make me so weak, it hurts to walk
I love how you make my insides hurt
I love how every noise sounds like it's screaming in my ear
I love how you make me grumpy & agitated
I love how you leave me helpless
I love how lonely you make me feel......