This blog used to be titled Sonya Fights Lyme. But I am no longer "fighting" Lyme disease. I am pushing forward, no longer a victim, no longer angry, no longer searching. I still have symptoms, but I am not letting them destroy me.
Tuesday, November 15, 2011
Daryl Hall on Howard Stern Talking About Lyme Disease
Tuesday, November 8, 2011
Light Therapy & IV Vitamin C
Went to my doctor yesterday in San Diego. Did my 2nd light therapy treatment and did my first IV Vitamin C. I had done a Myer's Cocktail with a glutathione push the week before. Did feel a little better that evening. But this time it was 25 grams of IV C with several other vitamins mixed in. As soon as it started to drip, I felt it. Apparently it was the magnesium. It came over me like a drug. Fast and smooth, putting me into a trance like state. I guess it has a way of calming you. It made me feel weird. My husband was asleep on the lounge chair in front of me but my trusty friend we'll call Hawaii was a couple chairs over. He said "just go with it". The acupuncturist said it was the magnesium and he loves the feeling. But then I got hot. REAL hot. My skin even flushed. I slowed the IV way down. My doc double checked it and slowed it back down a bit. My husband woke up and wanted to go home so he asked the doctor if we could speed it up. Everyone just looked at him. He has an excuse. He was asleep! I felt herxy and not so good afterwards. Could it be that the magnesium isn't so good for me. It was like night and day. I was feeling pretty darn good and then I was feeling REALLY bad. Even had to have my husband come to the bathroom with me because I was afraid I would fall. INTERESTING. I am supposed to do these once per week.
We made it home back to Temecula from San Diego for my husband to get back to work (he's a workaholic) and I just laid there in the car. Feeling pretty crappy. Got in the house and went to bed. CRAPOLA for several hours and developed a headache. But I still forced myself out of the house. My husband got a paycheck that day and so he wanted to take the family out to dinner. I didn't want to ruin for everyone so I sucked it up and went and I am happy that I did. We went to Pat & Oscars and got a family meal of gluten ;)
My doberman, Mango has had some bad luck with her health lately. She had an infected eye. It was so HUGE that it had swollen shut. Now she has a UTI. Her antibiotics after the culture were $111 and guess what? It's back and she just finished her last dose today. Taking in her urine tomorrow to get looked at. The last month, this dog has cost us about $500. YIKES!
Going back for my 3rd light treatment Thursday. Wish me luck. This is a very expensive treatment. $150 per treatment (twice weekly) plus time off of work for my husband to take me an hour each way, then an hour there, etc. The IV's are $100 per..... Aye aye aye! So far so good being off the antibiotics....
We made it home back to Temecula from San Diego for my husband to get back to work (he's a workaholic) and I just laid there in the car. Feeling pretty crappy. Got in the house and went to bed. CRAPOLA for several hours and developed a headache. But I still forced myself out of the house. My husband got a paycheck that day and so he wanted to take the family out to dinner. I didn't want to ruin for everyone so I sucked it up and went and I am happy that I did. We went to Pat & Oscars and got a family meal of gluten ;)
My doberman, Mango has had some bad luck with her health lately. She had an infected eye. It was so HUGE that it had swollen shut. Now she has a UTI. Her antibiotics after the culture were $111 and guess what? It's back and she just finished her last dose today. Taking in her urine tomorrow to get looked at. The last month, this dog has cost us about $500. YIKES!
Going back for my 3rd light treatment Thursday. Wish me luck. This is a very expensive treatment. $150 per treatment (twice weekly) plus time off of work for my husband to take me an hour each way, then an hour there, etc. The IV's are $100 per..... Aye aye aye! So far so good being off the antibiotics....
Sunday, November 6, 2011
Stopping the Antibiotics
Not the most attractive picture. |
I stopped my antibiotics. Again. I stopped the IV Rocephin 12 days ago (feeling ok with that) and stopped the doxycycline 2 nights ago. Last dose was Friday and it's now Sunday. I could barely lift my head from the pillow this morning. I am giving it 2 weeks. I promised my mother I would not insist my doctor pull my PiCC line out when I see him tomorrow. If in 2 weeks I feel as though I am dying, I will incorporate herbals. I will be in a rush to get them to my door. I don't feel as though I can continue with antibiotics. My gut (read instincts) tell me it's time to stop. I've been here before and got right back on after 2-3 weeks. Couldn't hack it. I will either do the Buhner Protocol or Susan McCamish protocol. For the past year, I have not seen much improvement. Only in the first year did I go uphill. When I relapsed back in September 2010, I never gained much ground again.
I am doing a light therapy using nosodes. According to the developer of the therapy, you must be off all killing antibiotics and killing herbs for the treatment to work. I haven't even told my doctor that I stopped. I will spring it on him on Monday. He should be thrilled I have my second treatment Monday. I am looking forward to it. If my blood results from the G6PD test are ok I will start IV Vitamin C therapy once per week. I would rather be poked with a needle every week than keep my PiCC line in.
I have had a rough month. 28 bad days. Just about as bad as it gets. I am making sure I leave my house almost daily regardless. I don't feel too bad today. Just feel like I have a really bad hangover. But I will have a little bite to eat and then accompany my husband to the local health food store for my daily juice. Organic: celery, cucumber, kale or spinach, pineapple, parsley, lime, ginger
God help me......
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