I am getting really frustrated being stuck in bed the past 3 days. It's bad enough when I am just stuck on the couch. I don't get it because when I first started the IV rocephin, I was the best I had ever been. I had a GREAT 2 months. I had even started exercising again. Then I crashed, hard. Scary hard. This was around the 12th of September when my lyme cycle hit. When I started pulsing, I started to feel better again right away. I even had a few good days in a row. And my muscle weakness that had returned had disappeared again. YAY! I have done 3 pulses over the past 3 weeks. I herxed on the 3rd day of the first pulse, then had those 3 good days. Then on the second pulse, I herxed again on the 3rd day. The day before the herx I had a good night & went to my nephews birthday party & felt pretty good (nights are always easier on me). I also made it to my step son's baseball game (night). But that's it. Since then, I started my lyme cycle & just finished my third pulse. I herxed again on the 3rd day HARD. This was my biggest herx (other than the early treatment herxes) and I laid in bed miserable all day. My husband was gone, I can't remember where he went. But I laid in bed all day & went downstairs only when I was desperate enough for something to drink & eat. I waited as long as I could hoping my husband would come home soon & either bring me something to drink or feed me. Luckily there were leftovers downstairs that only took a minute to heat up in the kitchen.
Well, now I'm telling a story. Oh well. Anyway, I just want to be able to get out of the house and on days where I just have fatigue (I can get up & clean & cook dinner in spurts) I want that to go away. The only time I have energy to do anything is at night when my family is ready for bed!
I am just wondering if I am ever going to get better. If I stop the drugs, I'll just deteriorate again & get worse. But my insurance is most likely going to cut me off soon. I also need to get co-infections tested, but I have to pay for that out of pocket & we can't afford it. I just know that if I don't treat the co-infections, the lyme can't go away. The only testing I have had was through the standard labs & you cannot count on them.
I want to try something natural as well, but there are so many things out there and no studies to back what they claim to do. I want to go see Dr. H up in the Bay Area, but he charges $650 per hour! LLMD appointments are usually at least an hour. I feel like the amount of money they charge is unreal. Especially for people disabled by lyme. Knowing that most of our care is paid out of pocket. In the meantime, I will try to save some money to go see a chiropractor in Yorba Linda that does ART (muscle testing) to see which naturals & antibiotics my body needs. She had lyme herself & treats a lot of Dr. H's patients down here. I need to save up $275 cash in order to see her. Oh bother..... Lyme disease is a rich persons illness. You only get better if you have money.