I love it how the NFL football players wore pink today in honor of breast cancer. I thought it looked cool. Can't figure out how they got their shoes pink though. It would be awfully cool to see them wear lime green one day.
Still feeling crappy, but I had 2 good days in a row. Yesterday I made it to the last half of my step sons baseball game and today my step daughter & had shopped at Target. I love Target, but I was reluctant to go for political reasons. I betrayed my beloved gays!! Oh well. I love the products & hey, I need to save money! I even went for a 1 1/2 mile walk with my step daughter tonight. I told her I'm getting flabby & since I can't work out anymore (last month was a different story), the only thing I can do is walk. My leg weakness is back, but it doesn't take much to walk. I am going to try to do 2 miles at least 3 times a week. I can't stand what lyme has done to my body.
Oh, my friend from Idaho Trish is in town visiting. Her daughter moved to San Diego so she is staying with me & driving out to visit her a few times. It's nice to hang out with Trish and her youngest baby boo Aaden. Aaden will be 2 end of December. He is THE BEST baby! Rarely fusses or cries & pretty much is happy 24/7. He's lovely. Has been since the day he was born. Aaden was born with down syndrome and so even though he is almost 2, he is still pretty small and is more like a 10-11 month old child, just a bit smarter & was easier to care for. He is a blessing. It's nice to have Trish around. We used to spend so much time together when we were single. She pretty much lived at my house. It's nice to have someone around again.....
Well, I have a doc appt set up Oct 26th, but I think I will be going in sooner. Not sure what is going on, this is the worst month I have had in at least 6 months. 3 good days out of a month is just insane. I am going to attempt coffee enemas if I can get my hands on all the equipment. I am terrified of an enema, but people swear by it for detox. I very well could be toxic. That would explain the constant hangover feeling, but to me, it doesn't explain the muscle weakness that returned. My only explanation is treatment failure. UGH!
Sunday, October 10, 2010
Monday, October 4, 2010
Eclipse Home Pump vs gravity drip
Well, rocephin was good. No, it was great! Notice I said WAS. nearly 3 months into IV Rocephin, I switched to the balls from the pain in the butt gravity bags that drip from that long pole. I was becoming more mobile & thought my medication should too. But as soon as I switched I went down hill & FAST! It came as the same time as my normal Lyme cycle. On rocephin , I skipped an entire month of a Lyme cycle so I had 2 months straight of good days. That would explain my absence from Facebook & this blog. When I feel good, I am living! I don't even want to think about Lyme disease. Like it is already a long lost memory.
Well, Lyme cycle hit, and this time it was a bit worse than normal. But I thought nothing of it. I know my body & I know this disease in my body. I know that yes, the bad days are pretty horrible. I am cranky, irritable, in pain, feel like crap, and almost wish I could detach my head from my body & just put it on ice until it all passes. But this time, after my usual 4 days of torture passed, I started to get worse and worse. It used to take me 3 weeks to pull out of cycle. But with a year of treatment, I was doing 3-4 bad days a month! I can live with that. 12 days passed & I decided that something was just wrong. I felt just about as bad as I did 5 months prior. This wasn't good. Joint pain, malaise, neck pain, headache that felt like my brain was going to swell out of my head, muscles twitches at an all time high, muscle weakness & shakiness, muscle pain & BELLS FLIPPIN' PALSY!! I only get it in my forehead, so you can't tell, but my forehead was numb again!! Only things that have changed were that I ran out of my LDN the past couple of weeks & while waiting for a paycheck, I couldn't refill it just yet. That, and I switched from IV gravity to those darn balls. But it's the exact same meds/solution, just different way of infusing. It takes less time & the Eclipse Home Pump is a ball that is pressurized in a balloon that gives you a steady stream. It's neat because you can just throw it in your pocket or purse & go. It also takes a minute to get it set up versus 10 minutes to set up the gravity.
So I am sick & desperate & consulting with my online Lyme friends to see if any of them had gone through a similar spell while being treated with rocephin. Nope, must be treatment failure. NOOOOOOO!!! I have my insurance miraculously covering all of this, nurse, meds, supplies, etc. I can't have to change to something they won't cover. So I spoke with my Lyme friend Melissa who lives in PA. I was asking her how she was doing. She had gone from Rocephin to oral antibiotics (had to quit because $800/wk was probably killing her) and last I had talked to her (months ago), she was doing well. So I got her update & she is doing great. She asked about me & I told her BAD, I am doing really BAD. I explained any changes, and when I mentioned the ball (Home Pump) she said, THAT'S IT! She said her LLMD (Lyme doc) told her that she is to infuse over a long period of time. I told her the pump went in about 20 minutes & my drip bags take about 35 mins to an hour. OK, that gave me some hope, and my husband was saying all along, "It's those balls that are making you sick!". So I experimented, I had 2 balls left & would have to wait for a couple of days for a new order. So I used the clamp to start & stop my ball so it would last over an hour. 10 seconds on, 5 seconds off. Yes, this was tedious, but this is my health & my life we are talking about. The next day, I woke up feeling better. Was it a coincidence? So I have had 2 decent days since. One day I got out to my step son's first baseball game. And made it to Costco without too much trouble. And today except for the lazy feeling (fatigue) I feel pretty OK. So with 2 weeks being on the ball & now about 6 days back on gravity, either I am recovering from my relapse of symptoms, or I am coming out of my cycle. I may never know.
My Step Son Contracted Lyme Last Week!
On another note. My step son went to the baseball field to practice with his winter ball team & wore shorts. They were just doing conditioning that day. The next day he had a big 'ol bite on his leg. No biggie, just looked like a spider bite. Stuck a little benedryl on it. The bump/bite healed & was gone. Until Sunday. He comes home from his grandparents house & says, "look what showed up where my bug bite was". It was a bulls-eye rash! So I took a pic of the rash & posted it on my Facebook & Twitter asking people what they thought of it. I kind of doubted that it could really be Lyme. I mean, what are the odds? Two of us in one family infected witihin 1.5 years of each other. Mind you, we live in a place that the health department and doctors swear there is no Lyme. Everyone said, "Bulls eye, bulls eye, bulls eye". Then I went online & looked for pictures of Lyme bull eye rashes. Because it wasn't a total Target logo. But here they were exact matches of the rash that were confirmed Lyme cases. SHIT!
So I called the hubby because I was too sick to drive & I said come home NOW & take him to the doc. They get to an urgent care & the doc had the where with all to know a Lyme rash when he sees one. He said that blood tests are not accurate enough & the rash counts just as good as any positive Lyme blood test. He wrote a script for a pathetic 10 days of doxycycline of a low dose (100mg twice daily). Lucky for me, I already knew this boy needs 200mg twice a day for 30 days, not 10. So that's what he is on. He is really tired constantly, but so far that is all we see. He is still playing baseball & the rash started to go away pretty quickly by the next day. I called my lyme doc & he said that's from the doxy doing it's job. Let's hope this cures this kid. It was about 5 days after his bite that he started treatment. He is 14 years old so he is old enough for doxy.
Well, Lyme cycle hit, and this time it was a bit worse than normal. But I thought nothing of it. I know my body & I know this disease in my body. I know that yes, the bad days are pretty horrible. I am cranky, irritable, in pain, feel like crap, and almost wish I could detach my head from my body & just put it on ice until it all passes. But this time, after my usual 4 days of torture passed, I started to get worse and worse. It used to take me 3 weeks to pull out of cycle. But with a year of treatment, I was doing 3-4 bad days a month! I can live with that. 12 days passed & I decided that something was just wrong. I felt just about as bad as I did 5 months prior. This wasn't good. Joint pain, malaise, neck pain, headache that felt like my brain was going to swell out of my head, muscles twitches at an all time high, muscle weakness & shakiness, muscle pain & BELLS FLIPPIN' PALSY!! I only get it in my forehead, so you can't tell, but my forehead was numb again!! Only things that have changed were that I ran out of my LDN the past couple of weeks & while waiting for a paycheck, I couldn't refill it just yet. That, and I switched from IV gravity to those darn balls. But it's the exact same meds/solution, just different way of infusing. It takes less time & the Eclipse Home Pump is a ball that is pressurized in a balloon that gives you a steady stream. It's neat because you can just throw it in your pocket or purse & go. It also takes a minute to get it set up versus 10 minutes to set up the gravity.
So I am sick & desperate & consulting with my online Lyme friends to see if any of them had gone through a similar spell while being treated with rocephin. Nope, must be treatment failure. NOOOOOOO!!! I have my insurance miraculously covering all of this, nurse, meds, supplies, etc. I can't have to change to something they won't cover. So I spoke with my Lyme friend Melissa who lives in PA. I was asking her how she was doing. She had gone from Rocephin to oral antibiotics (had to quit because $800/wk was probably killing her) and last I had talked to her (months ago), she was doing well. So I got her update & she is doing great. She asked about me & I told her BAD, I am doing really BAD. I explained any changes, and when I mentioned the ball (Home Pump) she said, THAT'S IT! She said her LLMD (Lyme doc) told her that she is to infuse over a long period of time. I told her the pump went in about 20 minutes & my drip bags take about 35 mins to an hour. OK, that gave me some hope, and my husband was saying all along, "It's those balls that are making you sick!". So I experimented, I had 2 balls left & would have to wait for a couple of days for a new order. So I used the clamp to start & stop my ball so it would last over an hour. 10 seconds on, 5 seconds off. Yes, this was tedious, but this is my health & my life we are talking about. The next day, I woke up feeling better. Was it a coincidence? So I have had 2 decent days since. One day I got out to my step son's first baseball game. And made it to Costco without too much trouble. And today except for the lazy feeling (fatigue) I feel pretty OK. So with 2 weeks being on the ball & now about 6 days back on gravity, either I am recovering from my relapse of symptoms, or I am coming out of my cycle. I may never know.
My Step Son Contracted Lyme Last Week!
On another note. My step son went to the baseball field to practice with his winter ball team & wore shorts. They were just doing conditioning that day. The next day he had a big 'ol bite on his leg. No biggie, just looked like a spider bite. Stuck a little benedryl on it. The bump/bite healed & was gone. Until Sunday. He comes home from his grandparents house & says, "look what showed up where my bug bite was". It was a bulls-eye rash! So I took a pic of the rash & posted it on my Facebook & Twitter asking people what they thought of it. I kind of doubted that it could really be Lyme. I mean, what are the odds? Two of us in one family infected witihin 1.5 years of each other. Mind you, we live in a place that the health department and doctors swear there is no Lyme. Everyone said, "Bulls eye, bulls eye, bulls eye". Then I went online & looked for pictures of Lyme bull eye rashes. Because it wasn't a total Target logo. But here they were exact matches of the rash that were confirmed Lyme cases. SHIT!
So I called the hubby because I was too sick to drive & I said come home NOW & take him to the doc. They get to an urgent care & the doc had the where with all to know a Lyme rash when he sees one. He said that blood tests are not accurate enough & the rash counts just as good as any positive Lyme blood test. He wrote a script for a pathetic 10 days of doxycycline of a low dose (100mg twice daily). Lucky for me, I already knew this boy needs 200mg twice a day for 30 days, not 10. So that's what he is on. He is really tired constantly, but so far that is all we see. He is still playing baseball & the rash started to go away pretty quickly by the next day. I called my lyme doc & he said that's from the doxy doing it's job. Let's hope this cures this kid. It was about 5 days after his bite that he started treatment. He is 14 years old so he is old enough for doxy.
Wednesday, August 18, 2010
Almost 6 weeks into Rocephin
Friday will be 6 weeks that I started 2 grams of IV rocephin once per day. First few days I was sleepy, then I felt pretty darn good. Felt like exercising! Then I was fatigued for 9 days. Then I as fine, but then my lyme cycle hit. I think I am now on 6 weeks cycles. WAY more good days than bad now. Since I started Bicillin injections in November, it has been a slow but steady incline in my health. I am very lucky. Any herxing I had was at the very beginning of treatment and was very minimal.
I went to the great doc (I love my doc) in Malibu last week & he said we'd be doing at least another 4 weeks of the Rocephin. He said that all my blood work is fine, so we will continue. I am happy because I know of people that have come a long way with Rocephin. I am especially looking forward to the brain fog lifting. I hope it goes away, or lessens soon. I have barely a short term memory & word recall is terrible. I always say "please hand me that thing" or "put it on the thing" or "I cleaned the thing today". Hubby gets frustrated with it, but he's much better than he used to be. Before we knew what was wrong with me, he used to get extremely frustrated with me & it would cause arguments because I couldn't remember what things were called, or I called certain things by a different name. I haven't been able to take my brain supplements for months as money has been tight, I haven't been taking many of supplements I was. So maybe once I start them that area will once again improve. I will be ordering them all again soon & see if that helps. I am also going to try cordyceps (it's a supplement) to see if that helps with anything as it's supposed to help with adrenal fatigue. I really should start up Lauricidin again to fight all of my viral infections, but it's hard to want to take when it makes me feel worse. And I have plans coming up. Including my 1 year wedding anniversary.
I want nto nnnmnnnmnbnggfgfgfgffffffffvvv
That was my crow helping me type this. I took a picture. I will try to figure out how to post it. I got a new phone & can't remember how I had it set up last time to be able to post pics to my blog.
Anyway, just hoping that a lot of my word recall comes back. My muscles have been improving though, so that's good!! I tried yoga the other day from Fitness TV and managed to get through 8 minutes. Wowee. I thought I'd be able to do the whole thing. Nope. But I can walk a couple miles & clean the crap out of my house, no problemo. So........
I went to the great doc (I love my doc) in Malibu last week & he said we'd be doing at least another 4 weeks of the Rocephin. He said that all my blood work is fine, so we will continue. I am happy because I know of people that have come a long way with Rocephin. I am especially looking forward to the brain fog lifting. I hope it goes away, or lessens soon. I have barely a short term memory & word recall is terrible. I always say "please hand me that thing" or "put it on the thing" or "I cleaned the thing today". Hubby gets frustrated with it, but he's much better than he used to be. Before we knew what was wrong with me, he used to get extremely frustrated with me & it would cause arguments because I couldn't remember what things were called, or I called certain things by a different name. I haven't been able to take my brain supplements for months as money has been tight, I haven't been taking many of supplements I was. So maybe once I start them that area will once again improve. I will be ordering them all again soon & see if that helps. I am also going to try cordyceps (it's a supplement) to see if that helps with anything as it's supposed to help with adrenal fatigue. I really should start up Lauricidin again to fight all of my viral infections, but it's hard to want to take when it makes me feel worse. And I have plans coming up. Including my 1 year wedding anniversary.
I want nto nnnmnnnmnbnggfgfgfgffffffffvvv
That was my crow helping me type this. I took a picture. I will try to figure out how to post it. I got a new phone & can't remember how I had it set up last time to be able to post pics to my blog.
 |
| He was a baby then..... |
One year anniversary of being sick.
August 14th marked the day my life was turned upside down by Lyme disease. Little did I know that those strange symptoms would last this long. Every day that I went to sleep at night I figured I would wake up feeling much better & whatever was ailing me would go away. But it never did. Lyme disease is a disease I don't wish on anyone. People don't understand it, so they treat you like a hypochondriac. I had to learn not to talk about it. Because it was obvious that they didn't want to hear it. This last year has been the worst year of my life. My friends & family have never been able to understand what this is like for me. And I know they have often thought all of this was in my head & probably still do. Or I could just make it go away if I just thought positively. If I didn't focus on the disease. TRUST ME, all I would do is tell myself I was getting better, & I would thank God & the Universe for my healing. Every day. I repeated it over & over. Whenever I would see a sign of healing, I would take it & run with it.
Lyme disease is a very lonely disease. It's different than having cancer. Cancer has a proven treatment, thousands of doctors & a government that acknowledges it & treats it. So when you have cancer, it's OK to feel sick. But not with lyme disease. With lyme disease, you are just lazy & bringing all of this upon yourself.
Please make sure everyone in your life wears their bug spray when they go to a park, playing on their front lawn, going camping, hanging by the lake or the river, hiking, gardening, etc. I don't want this to ever happen to anyone else. It's not just a physical illness, your family & friends will bail on you. Plain & simple. I don't know a single person with lyme that this hasn't happened to. As you get better though, they will slowly come back around. But you don't ever forget how they treated you when you needed them most. Sorry, I'm still a little bent out of shape about this. Not having anyone to talk to about what I was going through has been the hardest part. Being locked up in your house every day, 24 hours a day for days, weeks, months at a time with the rarest of visitors or phone calls. I am lucky to have my husband & the support of the people that I have met online. Without my "virtual friends" this journey would have been a lot darker & who knows where I would be right now, if here at all. (I love my dogs. Two of them just came up to me & gave me a kiss). They know I am hurting.
Friday will be 6 weeks that I started 2 grams of IV rocephin once per day. First few days I was sleepy, then I felt pretty darn good. Felt like exercising! Then I was fatigued for 9 days. Then I as fine, but then my lyme cycle hit. I think I am now on 6 weeks cycles. WAY more good days than bad now. Since I started Bicillin injections in November, it has been a slow but steady incline in my health. I am very lucky. Any herxing I had was at the very beginning of treatment and was very minimal. It usually included extreme nausea & feeling like I had food poisoning. My body & head hurt & it was pretty much agony. 1st herx lasted 5 miserable hours. 2nd time that happened it lasted for 2 hours. And then my herxing was diminished to just mild nausea off & on. It usually occurred the day after an injection of Bicillin, so I know that's what it was.
I went to the great doc (I love my doc) in Malibu last week & he said we'd be doing at least another 4 weeks of the Rocephin. He said that all my blood work is fine, so we will continue. I am happy because I know of people that have come a long way with Rocephin. I am especially looking forward to the brain fog lifting. I hope it goes away, or lessens soon. I have barely a short term memory & word recall is terrible. I always say "please hand me that thing" or "put it on the thing" or "I cleaned the thing today". Hubby gets frustrated with it, but he's much better than he used to be. Before we knew what was wrong with me, he used to get extremely frustrated with me & it would cause arguments because I couldn't remember what things were called, or I called certain things by a different name. I haven't been able to take my brain supplements for months as money has been tight, I haven't been taking many of supplements I was. So maybe once I start them that area will once again improve. I will be ordering them all again soon & see if that helps. I am also going to try cordyceps (it's a supplement) to see if that helps with anything as it's supposed to help with adrenal fatigue. I really should start up Lauricidin again to fight all of my viral infections, but it's hard to want to take when it makes me feel worse. And I have plans coming up. Including my 1 year wedding anniversary.
I want nto nnnmnnnmnbnggfgfgfgffffffffvvv
That was my crow helping me type this. I took a picture. I will try to figure out how to post it. I got a new phone & can't remember how I had it set up last time to be able to post pics to my blog.
Lyme disease is a very lonely disease. It's different than having cancer. Cancer has a proven treatment, thousands of doctors & a government that acknowledges it & treats it. So when you have cancer, it's OK to feel sick. But not with lyme disease. With lyme disease, you are just lazy & bringing all of this upon yourself.
Please make sure everyone in your life wears their bug spray when they go to a park, playing on their front lawn, going camping, hanging by the lake or the river, hiking, gardening, etc. I don't want this to ever happen to anyone else. It's not just a physical illness, your family & friends will bail on you. Plain & simple. I don't know a single person with lyme that this hasn't happened to. As you get better though, they will slowly come back around. But you don't ever forget how they treated you when you needed them most. Sorry, I'm still a little bent out of shape about this. Not having anyone to talk to about what I was going through has been the hardest part. Being locked up in your house every day, 24 hours a day for days, weeks, months at a time with the rarest of visitors or phone calls. I am lucky to have my husband & the support of the people that I have met online. Without my "virtual friends" this journey would have been a lot darker & who knows where I would be right now, if here at all. (I love my dogs. Two of them just came up to me & gave me a kiss). They know I am hurting.
Friday will be 6 weeks that I started 2 grams of IV rocephin once per day. First few days I was sleepy, then I felt pretty darn good. Felt like exercising! Then I was fatigued for 9 days. Then I as fine, but then my lyme cycle hit. I think I am now on 6 weeks cycles. WAY more good days than bad now. Since I started Bicillin injections in November, it has been a slow but steady incline in my health. I am very lucky. Any herxing I had was at the very beginning of treatment and was very minimal. It usually included extreme nausea & feeling like I had food poisoning. My body & head hurt & it was pretty much agony. 1st herx lasted 5 miserable hours. 2nd time that happened it lasted for 2 hours. And then my herxing was diminished to just mild nausea off & on. It usually occurred the day after an injection of Bicillin, so I know that's what it was.
I went to the great doc (I love my doc) in Malibu last week & he said we'd be doing at least another 4 weeks of the Rocephin. He said that all my blood work is fine, so we will continue. I am happy because I know of people that have come a long way with Rocephin. I am especially looking forward to the brain fog lifting. I hope it goes away, or lessens soon. I have barely a short term memory & word recall is terrible. I always say "please hand me that thing" or "put it on the thing" or "I cleaned the thing today". Hubby gets frustrated with it, but he's much better than he used to be. Before we knew what was wrong with me, he used to get extremely frustrated with me & it would cause arguments because I couldn't remember what things were called, or I called certain things by a different name. I haven't been able to take my brain supplements for months as money has been tight, I haven't been taking many of supplements I was. So maybe once I start them that area will once again improve. I will be ordering them all again soon & see if that helps. I am also going to try cordyceps (it's a supplement) to see if that helps with anything as it's supposed to help with adrenal fatigue. I really should start up Lauricidin again to fight all of my viral infections, but it's hard to want to take when it makes me feel worse. And I have plans coming up. Including my 1 year wedding anniversary.
I want nto nnnmnnnmnbnggfgfgfgffffffffvvv
Anyway, just hoping that a lot of my word recall comes back. My muscles have been improving though, so that's good!! I tried yoga the other day from Fitness TV and managed to get through 8 minutes. Wowee. I thought I'd be able to do the whole thing. Nope. But I can walk a couple miles & clean the crap out of my house, no problemo. So........
Tuesday, August 3, 2010
 | |
| Doing my infusion, hubs didn't turn on the flash & we were in the middle of cooking dinner so my kitchen is a mess. |
 | |
| Flushing the line. You can see the sock on my wrist that I cut for a PiCC cover. |
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| This is Dry Pro PiCC cover. Doesn't work for me. I was hoping I could go swimming, but nooooo. Mine leaks. So no showers. I just sit in 2 inches of water & bathe. And to wash my hair, I do it in the sink. |
I have been away from blogging for a while. Every time I start to blog, I get interrupted. But this is a good thing. That means I am not laying in bed all that much anymore. When I first started the IV Rocephin, I was sleepy for a few days. Then I suddenly felt a little better. Had some strange issue after day 4 where my neck & upper chest felt pressure, but it eventually went away. And I even felt like I could exercise. So I did. I jumped on my rebounder (mini-tramp) 500 jumps. I was told not to get into the cardio zone, so I stopped & started. But the next day, I was done. Haven't exercised since & I think I have only spent 1 or 2 days in bed. Today, I had to run up my stairs & I realized it wasn't horribly painful. So I will definitely work out today.
I am very pleased with my home health nurse. He is awesome & so knowledgeable about the world. So he is nice to be around. I am pleased. He used to come every day in the beginning. Now he comes once a week to draw blood & change my PiCC line dressing. That is something I need to learn how to do on my own though in case insurance cuts me off.
So far, nothing drastic has been noticed, but my symptoms have definitely been reduced. I am just waiting for my cognitive stuff to clear up. I would like to be able to recall the names of things again. :)
I also want to go back to do the MedSonix treatment again. As I think it truly was a tool in my recovery. My joints have not bothered me at all since those 3 treatments. And I think I have only had 2 headaches since. And both were very minor.
I have had a yeast over growth due to the IV Rocephin & the Biaxin, so I am on 10 days of Duflican & doubling up on my probiotics (when I can remember).
Tuesday, July 13, 2010
Picc Line
Ta-Daaaaa! There it is. Was a piece of cake. I am sooo glad I went to Cedars-Sinai to have it done. Truly a great experience. That hospital has the best patient service I have ever seen. EVER. They even called me yesterday to ask if there was anything they could have done better! I said nope. Everyone I spoke with from the first phone call to the Procedure Center to every registration call after that, to the cookies & OJ they gave me afterwards.
So I lucked out with who placed my PiCC & I lucked out with the RN as well. Most lymeheads I talk to say their nurse "got in their way" or made things worse, or weren't careful or sterile or pulled on their line, etc. Not mine! Dalmor is one of the smartest, most interesting people I have ever met. He is very thorough. I am very happy to have him.
Up until yesterday all of my infusions had been going very well. No problems what so ever. Just some heart palpitations, but I was warned by other rocephin IV users that that could happen. Yesterday I felt a tightness in my throat. And after the infusion, we drew blood through my PiCC line. I felt a tightness in my upper chest. Not over my heart, but right under the front of my neck. It was only bothersome at first, but it continued to worsen to the point of being uncomfortable. Otherwise I was fine, I could swallow fine & breathe fine. But if I leaned forward only slightly, I would feel an immense amount of pressure on my lower neck (throat area) and upper chest. So I took a benedryl (just in case was allergic reaction) & went to bed a little freaked out. Well, I stayed up & had my friends on Facebook freak me out. Telling me I should never have blood drawn from a PiCC. WHAT? I was always told I wouldn't need to get stuck anymore for blood draws. Anywho- I won't do it again just in case.
So I called my nurse this morning. He said that when he comes this afternoon he will change the dressing (my arm got sore 2 days after PiCC was installed). We are going to peek under the dressings & make sure all is fine. I faxed a note to my doctor explaining what I was still experiencing this morning when I woke up. He called me immediately & gave me his cell phone number to have my nurse call him when he gets here. That made me feel good & I promise to never use it. Unless I am dying. Then that promise is out the window. Ahhhhh, I love my doctor. And have I ever mentioned that he takes my insurance? Oh and that he listens to me? And has zero ego (well, if he does, I haven't seen it yet).
I'll post again and let everyone know if we can get this figured out.
Monday, July 5, 2010
PiCC time
I went to see my doc out in Malibu last Thursday. We talked about my increasing joint pain, etc. Decided it's time to Be Aggressive, B-E Aggressive! (If you were a cheerleader, you know). So we are going to try at least 6 weeks of IV Rocephin. I'll let everyone know when this is going to happen. I want to get it done at my docs hospital Cedars-Sinai. They really know what they are doing with PiCC lines & I am a wimp, so that's probably the best place to go. I'm going to call my docs office today & see what's going on with that.
The day of my appointment, we decided to take our 16 year old & one of her friends with us to Malibu. After all, my docs office is literally seconds from the ocean. So we joined the girls at the beach. Where we went to the beach there also happens to be a bird sanctuary. There were hundreds of cool birds. GIANT pelicans flew over our heads. We made some bird friends while we were there. There were a lot of jelly fish that had washed up on shore. We had to be careful not to step on them It was a lovely day. Until we got up to leave. My husband so kindly pointed out that the backs of my legs were FRIED! I forgot to put sunscreen on the backs of my legs!! I am still burned badly & it's been 4 days. I have never burned like this in my life (well except for the time when I was going to college & I went in a bad tanning bed & ended up in bed for 3 days vomiting from sun poisoning). Can you say PAIN?
The day of my appointment, we decided to take our 16 year old & one of her friends with us to Malibu. After all, my docs office is literally seconds from the ocean. So we joined the girls at the beach. Where we went to the beach there also happens to be a bird sanctuary. There were hundreds of cool birds. GIANT pelicans flew over our heads. We made some bird friends while we were there. There were a lot of jelly fish that had washed up on shore. We had to be careful not to step on them It was a lovely day. Until we got up to leave. My husband so kindly pointed out that the backs of my legs were FRIED! I forgot to put sunscreen on the backs of my legs!! I am still burned badly & it's been 4 days. I have never burned like this in my life (well except for the time when I was going to college & I went in a bad tanning bed & ended up in bed for 3 days vomiting from sun poisoning). Can you say PAIN?
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