This past month has been very hard on me emotionally. I am getting close to 2 years in treatment & being sick. I have been getting worse. I KNOW in my gut it is because I have co-infections that are not being treated. My CD 57 is high & has been high for a year, yet I am not improving. This HAS to be co-infections. My doctor won't treat me for Bartonella, which I suspect & have symptoms of. I asked for Rifampin after Burrascano's last talk. Rifampin treats Bartonella & it may also act as a cyst buster. So a double whammy for me! I can't take traditional cyst busters (flagyl or tinidazole) due to an allergy. I was very disappointed at my last appointment.
I need to get an MRI on my brain
(waiting for insurance authorization) and an echo-cardiogram for my heart. (Ugh! I forgot to call around to find a place to get the echo done locally!) I am able to get the MRI here in the city that I live in. YAY! I need to get that echo scheduled because I have been having heart issues & a sharp pain that feels like it's in the center of my heart.
Anyway, I am trying to work on being more positive. I am usually very positive and my fellow lyme friends can always count on me to be their cheerleader. I have a LOT going on in my family right now. I just found out a few weeks ago that my DEARLY LOVED father has neck cancer. He is undergoing intensive radiation & chemo. My parents hid it from me because I had been in & out of the hospital so many times when they found out they didn't want to worry me. Then I just found out my grandfather has colon cancer (just found out 3 days ago). He just mentioned it casually to me in conversation. He is 87 years old & put off the exam & so now it may be too late, he may be too sick to handle surgery or treatment. I have been telling myself I need to get up North to see my grandfather. I always think I'll feel better in a couple of months & can make it up.... but it never happens. I need to get better and get some money together to see my grandpa and while I am up there, I hope to see Dr. Harris.
I want April to be over......
I will get the money together. Things will get better for me. Things will get better for all of us. I will get the treatment that I need and deserve!!! Everything always works out. It will work out for me and for my family.
I need to get an MRI on my brain
(waiting for insurance authorization) and an echo-cardiogram for my heart. (Ugh! I forgot to call around to find a place to get the echo done locally!) I am able to get the MRI here in the city that I live in. YAY! I need to get that echo scheduled because I have been having heart issues & a sharp pain that feels like it's in the center of my heart.
Anyway, I am trying to work on being more positive. I am usually very positive and my fellow lyme friends can always count on me to be their cheerleader. I have a LOT going on in my family right now. I just found out a few weeks ago that my DEARLY LOVED father has neck cancer. He is undergoing intensive radiation & chemo. My parents hid it from me because I had been in & out of the hospital so many times when they found out they didn't want to worry me. Then I just found out my grandfather has colon cancer (just found out 3 days ago). He just mentioned it casually to me in conversation. He is 87 years old & put off the exam & so now it may be too late, he may be too sick to handle surgery or treatment. I have been telling myself I need to get up North to see my grandfather. I always think I'll feel better in a couple of months & can make it up.... but it never happens. I need to get better and get some money together to see my grandpa and while I am up there, I hope to see Dr. Harris.
I want April to be over......
I will get the money together. Things will get better for me. Things will get better for all of us. I will get the treatment that I need and deserve!!! Everything always works out. It will work out for me and for my family.
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