A Little Inspiration

I saw this video and it inspired me to do a little yoga back in the Spring.  It's been making its rounds around Facebook lately, and I thought I too should share.  True inspiration.  For anyone.  Enjoy. Don't forget the tissues.

I Know I Need to Post an Update

I know I need to post an update. My laptop has took a final nose dive and is now in laptop heaven.  I have my handy iPad but its not great for typing.  I'll update soon and reply to comments at some point.  

I have not been doing so well since my surgery in June and in September I posted an update and I've been the same since.  Up until the past few weeks!  I'm starting to feel better again, more like pre-surgery. I even have a killer cold right now that has me up tonight with a fever of 101.2 and a racing heartbeat. I feel like death warmed over, but at least I know my immune system is working!  Right?

I'll post an update soon and now that I'm feeling better overall (well,once this cold is gone) I'll post the update, tell you about my new doctor.  I also want to tell you about a great nutritionist that has helped me a lot. She is on the other side of the US but we Skyped.  Check her out if you like www.supernaturalnutrition.net I'll give details later. Good stuffs. 

I didn't bail on you!

 Xoxo

-Sonya

Beyond Lyme Disease

Looks like Connie Strasheim is at it again.  I am so excited to read this book, let me tell you!  This is right up my alley and similar to what I have been focusing on since I stopped ILADS treatment for chronic Lyme disease.  I am so happy that someone with influence in our community took the time to right this book.  I have felt this way and have tried to help others to understand but I have been rejected, cast out, and turned away for having ideas other than KILL, KILL, KILL (killing spirochetes with antibiotics, etc).

Pick up this book.  I haven't got my copy yet, but from what I've read, this is the road.  Here is more info from the publishers site.  You can click the pic and be taken directly to the website.

My Two "Holy Grail" Supplements for Lyme Disease Recovery

I HAVE to promote this supplement!  Life Extension Super Bio-curcumin.  I ran out of this stuff about a week and a half to two weeks ago.  I've been taking one daily since last April (I think I started out taking one per day and moving up to two per day, one AM and one PM).  When my husband and I saw it during our last trip to Vitamin Shoppe, I pointed it out and said that I had just ran out of this, and I should buy some.  But I am trying to be frugal because I spend a lot of money on supplements and when you feel good, you think you no longer NEED certain things.  Well, I've been feeling pretty crappy for the past 10 days or so.  Started with just my right hand being in pain every morning and feeling head achy and blah.  Then moved to both hands and now my neck and shoulder pain is pretty intense all day, every day.  Also headaches from hell off and on, no energy, haven't been walking, doing stuff, etc.  Just haven't been "myself".  A couple of days ago, this stuff popped into my head for some reason, but I dismissed it (my body speaks to me, I just need to listen).  Then last night as I was trying to fall asleep, it came into my head again.  And I realized DUH!  This stuff helps my pain and inflammation!  Forget trying to save money, this stuff works!  My husband is on his way to Vitamin Shoppe as I type this to get it.  Can you say "HERO STATUS"?  I said to him, remember about 4 months ago when I ran out?  Same exact scenario. I had found it during an online search at Vitamin Shoppe (I was buying it online on Amazon or iHerb) I sent my husband to go get it.  It was our first ever trip to or purchase at a Vitamin Shoppe.  So while I was explaining to my husband how last time I ran out, I felt like crap and was in pain, blah blah blah and I found my review from back then (in May) on Amazon about how bad I felt after running out and we are going to try to find it somewhere local, no matter the cost.  

Anyway, I wanted to share this with EVERYONE!  I never noticed how much this stuff helped me until I ran out.  Same goes with the Liposomal Glutathione.  I didn't notice until I was out of it.  These two items I will never let myself run out of again!  I may try using Liposomal curcumin since this version is working so well for me.  Or maybe I'll attempt to make it myself.  I'm also going to post this on my blog.  Shouting it from the rooftops people!!!

So there you have it.  Super Bio-Curcumin and Liposomal Glutathione are my two HOLY GRAIL supplements that I will not live without.  So not worth it to save money.  My health and the way I feel is more important.

There is a reason for not just taking plain old glutathione or plain old curcumin (an extract of turmeric).  Apparently neither one of these substances are bio-available in our bodies.  Do a Google search on either one and you will see why I take them in these different, more costly forms.


You can find the Super Bio-Curcumin at a Vitamin Shoppe near you , they have GREAT prices.  Or you can find it online on Amazon.com or iHerb.com.  I made the links go straight to where you want to go.

Now in regards to buying Liposomal Glutathione (or even Vitamin C or Curcumin) I get that stuff from Let's Talk Health or from Amazon here it is on Amazon.  They also have a Liposomal version of Vitamin C.  I can make my own liposomal vitamin C and Glutathione, but I still purchase it from time to time when I can't find a good source of the pure forms of the two substances.

Near Death Experience?

Okay, I know.  The title is quite shocking, but I think this could be truly counted as a near death experience. You tell me what you think.  Be prepared, this is going to be a long post.

I've been having heart palpitations since I got sick.  Well, I've had them since I was 15, but intense ones since I got sick.  They have always bothered me and I often told my husband that I feared that my heart would just stop or that I would have a heart attack or something.  Always made to feel like I was overreacting, I didn't buy into it.  Neither did any of my doctors.  Let's see, I had told 3 LLMD's and my current primary care doctor about these issues.  With one of my doctors, I actually went to his office the next morning after an "episode" and told him I had a heart palpitation that lasted for about 20 seconds or some kind of something went on with my heart.  I asked for an EKG.  He listened to my heart, said it sounded fine, and that I didn't need one.   I was reassured, chalked it up to being a "hypochondriac".   Now that I think about it, my 2nd LLMD did order an echo cardiogram to make sure I was fine and did an EKG, so he didn't ignore it, I was just never referred to a cardiologist.  It is common with Lyme disease to think you are going to drop dead without a moments notice.  And it HAS happened to people.  WAY too often.

Anyway, I had 2 "events" or "episodes" about 6 or so months ago that really got me worried.  One while I was home alone with my teenage step daughter (the time I mentioned above) and another time when I was driving in a shopping center parking lot.  I felt it, it didn't end, and then I started to feel the strange blackness over come me.  It was similar to when I have fainted in the past, but not as intense.  I knew something was wrong and I knew it was related to my heart.  I thought, if I pass out here now, I could kill someone (people were crossing in front of me) so I rolled down my window and hit my E brake.  It passed and I carried on.  Went straight back to where I dropped my husband off for his haircut and told him something bad just happened with my heart and it is best that I stay off the road.

Being the drama queen that I am, that I KNOW I can be, I ignored it.  Until one morning, I woke up and my gut, my intuition, whatever you want to call it, told me to go see a cardiologist.  So I Googled "cardiologist", found one near me, Shiva Heart Center, called, no answer, they were out to lunch.  I'll call in an hour.  I forgot.  I would usually forget the whole thing, assume I was probably imagining these episodes or it was psychosomatic and just drop the issue.  But no, the next day I looked the place up again and called....

There is a reason I am telling you all this.  The reason is to TRUST YOUR GUT INSTINCTS.  You know your body better than anyone.  Had I not trusted my gut, well I would still be here now, but I may not be here a year from now.  Anyway, back to the story.....

They had a cancellation for the following day and offered me the appointment.  I made it and called my husband to make sure he could come with me.  I wanted him there to help advocate for me.  He had felt my heart beat irregularly before and now he too was a believer that something was truly going on.  We get there and the gal at the front desk tells me I need a referral and sent me away until they got approval, but waiting for the elevator, I was upset, I knew I needed to see this doctor today.  I told my husband, I'm going back in and I'm going to ask for the manager.  They saw me right away.  The doc was great.  Gotta love young doctors.  They seem "hungry" for finding the solution to your problem.  My primary care that first diagnosed me with Lyme disease, he was young and he wouldn't give up on me when several had.

Dr. Bhojraj said that he was going to order a Holter Montior for me.  It would stay on for 24 hours to 30 days.  He ordered an echocardiogram, an EKG, and a treadmill stress test.  These things would be spread out over the span of about a month.  The monitor was placed within a few days.  He told me that if we didn't see anything, he would implant a device that could stay for up to 3 years.  THIS DOCTOR BELIEVED ME!  Anyway, the monitor was placed and wouldn't you know it, no palpitations or other events.  I wore that thing around my neck and attached to my body for about 3 weeks.  I carried this cell phone that was part of the heart monitor system.  Very high tech, but also a pain.  It was there to alert the monitoring company if I needed an ambulance and it sent the data over the cell phone to the monitor company.  I told my mom and my aunt that I hadn't had any episodes and that it must all be psychosomatic and that I was "cured".  I must say I was a little disappointed that we didn't catch an event like I had had in the past.  I would move on and accept that my heart was fine, but in the back of my mind, I would always question what was going on.

Here is the cell phone that went with the holter monitor.  The heart would "beat" and the electrodes would beep and it would show me which electrode was not attached right or if I wasn't plugged in correctly.

This brings me to Thursday, June 28th, 2012.  I'm in bed, not feeling well at all.  I was going to push myself.  Here is my post on Facebook right before I got up:

Sonya

June 28 via mobile

Not having a good day so far physically. But I'm going to grab my boot straps. Or is it pick myself up by my boot straps. Whatever it is, I'm going to get off my fanny and go downstairs to feed my dogs and make my green tea latte. Then I hope to make it in the shower. I may not make it back upstairs, but we shall see :)

I got up and realized, I think I'm going to pass out.  I calmly hollered downstairs to my son (he is 16), "I'm going to pass out."  He said, "Ok."  I know he didn't realize what I meant.  Later he told me he thought I meant take a nap.  I then told him to call dad.  Then he knew, "Uh oh".  He had never been awake when I had anything bad happen to me.  The house phone wouldn't work, my husband had the main phone unplugged for the fax machine and forgot to plug it in. He came up and I had laid myself on the floor at the foot of my bed.  I've fainted plenty of times in my life and always prepare the poor person that has to witness me laying there unconscious.  Must be scary.  But I always tell everyone not to call an ambulance, just get me wet, cold washcloths and place them on my head, chest, etc.  I figured this was a fainting episode and perhaps a seizure.  I had plenty of time to tell him to get the washcloths and that I may have a seizure and that I was sorry.  I felt bad.  Out I went....

When I came to, I had no idea who I was or where I was.  Never has that happened to me.  I thought I had been drugged with a roofie or something.  That I must have been out at night (haven't been in years) and that I must have been drugged.  But then, who was I?  I felt someone rubbing my side.  Then I heard them speaking to me, telling me that I would be ok.  My vision was spinning, it was just like in the movies, I was trying to focus and then I turned and saw my son's face.  Only I had no flipping clue who he was.  No idea, he says when I looked at him, my eyes got really wide, and he could tell I had no idea who this guy was touching me.  It was sweet though, he said, "You'll be okay Sonya, you're okay" (he is my step son so he calls me by my name) as he was rubbing my side.  I recognized his voice before his face and once I realized who it was I relaxed and just laid there.  My husband was on his way and he told our son to call 911.  He had trouble apparently calling out on his cell phone as well.  But I heard the sirens and told him to lock the dogs up.  I also asked him to please put some sweats on me because I was in a short robe laying on my side in a ball.  He moved in record time.  I asked him if I had a seizure and he said yes, just a little one.  He said my whole body shook for about 3 seconds.  While laying there, my heart was going crazy.  Like a drum was being beating in my chest, it was pretty uncomfortable, and I thought, oh geez, I think I'm going to die now.  I was too weak to say anything.  I remembered that the cell phone to the holter monitor was up on my pillow. I was hoping it was catching this.  Little did I know that it was catching this and a whole lot more.

By the time everyone shows up, I'm a little embarrassed. I looked horrible and still had zit cream on my face!   They said I was really pale and asked my husband if I was usually that pale.  No.  They sat me up and I felt faint, so they laid me back down.  I told them I didn't want to go to the hospital, they wouldn't find anything wrong anyway.  They saw my holter monitor and I assured them that I was just wearing it to rule out any heart issues, not because I had any type of diagnosis.  Well, you wear one of these and you are going.  So off I went zit cream and all.  I asked if I could at least put on a bra and nope.  

In the ambulance, the electrodes from the heart monitor were in the way of what the paramedic wanted to do.  He wanted to take a picture of my heart.  Hmmm... apparently they can do that.  So I told him to just remove them.  While en route to the hospital, I hear another ambulance dispatched to my address.  The guys say, hey, that's your house, we were just there.  I told them it was probably because I disconnected my heart monitor.  But I must not have been thinking right because I had it disconnected every day for my shower.   Not sure why it didn't register.  I'll explain in a minute. The paramedic asked me what my normal heart rate was, because it was pretty low, it was at 50 bpm.  I said it is normally somewhere in the 60's.  Trust me, I know my heart rate.  I had issues with tachycardia before Lyme treatment and when I would have heart episodes, those episodes would have me checking my heart rate often. 

So I get to the hospital, they explain to the RN's that my chief complaint is dizziness.  They don't mention the passing out.  I found that odd, but I did tell the RN about it.  Syncope is I believe what they call it.  The ER doctor comes in and says he wants to do some blood work and check the enzyme levels of my heart, etc.  I'm thinking nothing and that they will send me home.  Then he comes back in he looks away from me and leans up against the wall.  Now I know, he was delivering bad news, but at the time, I didn't read his body language.  He says, "I just got off the phone with your cardiologist..."  I'm thinking, how did he end up on the phone with my cardiologist?  "You had a 20 second pause.  You had a 20 SECOND PAUSE!"  He wasn't shouting, but he was pretty animated and expressive.  I didn't know what that meant.  My husband didn't know what that meant.  He said that the holter monitor company also had called 911 after my son had because there is a delay in the connecting of the device I'm wearing and the cell phone (it updates every few minutes).  That explains the 2nd ambulance to my house. It recorded that there was 20 seconds where my heart didn't beat.  Was this a big deal?  Apparently so.  He said that I was being admitted and then he looked at me for the first time since he came back in the room and said, "You are going to the OR, you need a pacemaker."  That was the bad news his body was delivering.  He also said that they give pacemakers to people that have a 1.5 second pause.  So I was getting a pacemaker, end of story, period.  Don't think I had much of a choice.  I later learned that had I left the hospital without one, I would have had my driver's license revoked.  Good point.

I called my cardiologist and he said he was getting me the best surgeon to do this operation.  Dr. Lo is a Cardiac Electrophysiologist and that he does thousands of these operations every year throughout Southern California.  He said he didn't feel comfortable doing it because of two reasons.  I was young (most people with pacemakers are elderly) and because I was female and I was going to be wearing bathing suits and tank tops and he wanted to get me the best.  These pacemakers can be hideous looking.  I appreciated that and relaxed.  My husband's boss came to sit with me while we waited to find out details and I don't know how many doctors came in to look at me and say, "20 second pause?"  I'd have to ask her, but there was probably about 5.  Well, my heart apparently started beating again because it was young and healthy.  I still don't understand why it stopped in the first place.

Got my pacemaker that night and I must say it is a bigger deal than I thought it would be.  I stayed in the hospital over night and until the next afternoon.  They ended up placing the pacemaker under my chest muscle instead of under the skin.  Dr. Lo had told my husband after the surgery that I was too thin to have it placed under the skin.  So I would be in more pain and recovery time would be a bit longer.  But that I would be thankful later because of my age and that it wouldn't be as obvious when I wore tank tops, etc.  I appreciated that.  I found out a week later that I really had the Rep for the pacemaker company (Sara @ Medtronics) to thank for that.  I ended up meeting her last week at my cardiologists office.  She didn't recognize me but when she asked why had a pacemaker, that I was so young, I told her I had Lyme disease for a few years and that according to my cardiologist, the ER Physician (who used to see a lot of Lyme disease patients in the ER in Oregon), and the Cardiac Electrophysiologist this was due to the Lyme disease.  I ended up mentioning the 20 second pause and she looked up at me and said, "It was you?  I was in the OR with you.  Wow, a 20 second pause, well, you could of..... (now whispering) you could have died!"  I was reminded of this over and over again while I was in the hospital.  I didn't sleep much that night after the surgery and a couple of nurses came in to meet me, the "20 second pause girl".  Sara, the Rep told me that if she ever had to have a pacemaker she would choose Dr. Lo to do the procedure and that she was the one that talked him into putting it under my muscle.  She says she sees hundreds of patients with pacemakers per month and that I was so young and so tiny, that it would really be obvious and most likely both me.  She really went to bat for me.  So thanks to Sara!  When I asked my cardiologist what my diagnosis is he said, it is sinus arrest secondary to Lyme disease.

I did have a hard time coping with the pacemaker for the first several days.  I could feel it in me and it just effected me.  I cried a lot.  And I didn't feel well, and so I was afraid I had suffered a relapse of the Lyme disease.  I figured the surgery and anesthesia must have taken it's toll.  I ended up having some good days and Dr. Vinayak told me I had better appreciate, accept, and love that pacemaker.  So I have (I think).  My husband named it "Thumper".  It is the latest and greatest and it is MRI compatible which apparently is a big deal.  My extended family has really rallied around me and I think it has brought us closer together.  My sister, my nana, my aunt and my nieces have stayed in touch and continuously checked up on me.  My mom was out of town so she couldn't come help out during my recovery.  My husband works two jobs so my neighbor and some of my great friends came from a distance to sit with me while I would have otherwise been home alone and to help me eat, etc.  It wasn't the eating, but I couldn't dish out or serve my food with only 1 arm.  It was nice to be cared for.  My husband did THE BEST job and he tried not to stress too hard.  I had surgery a little over a year ago along with a 3 night stay in the hospital in Los Angeles and that was really hard on him.  So he did a great job.  We had help and I am so grateful.  Two nights in a row people from his office brought over dinner for us and it was great.  He even took me to my hair stylist to have my hair washed and blow dried for me.   I am so GRATEFUL!  I sent out cute thank you cards that I found at Trader Joes.

Thumper

I had my birthday a couple of days ago and here was my cake.  My mom really went all out and splurged!  I didn't make any plans with friends because I haven't been feeling back to my self and I didn't want to have to flake at the last minute and disappoint.  I live about an hour from everyone now.  So it was me, hubby, my son, and my mom.  My son had to go to work but the 3 of us went and saw the movie Ted.  I had to push myself, but I was so happy I went and didn't spend another birthday in bed or on the couch. 

P.S.  I should be trying out Synchronicity Wave System very soon at Dr. Vinayak's house.  I'll post once I try it out.  If I remember, we will do a video!  So stay tuned.  Here is some info on the system.  http://drchriskaufmann.com/main/synchronicity-wave-system/

Dr. Vinayak on a Talk Radio Show

Everyone knows I am a big fan of my "healer", Dr. Vinayak.  He was on the talk radio show In Short Order on Father's Day.  Dr. Vinayak is so willing to help others.  He does the conference calls with me and my friends every Wednesday (feel free to join us) to offer emotional support.  Every week, I am enlightened, inspired, and healed emotionally.  You would be amazed at how much our emotions effect our health.

A lot of people with Lyme disease had a stressful event preceding the symptoms of Lyme disease.  I was a complete stress ball when I came down with Lyme disease.  I was planning my wedding.  I have a friend who had a death in the family, another friend who was in a car accident, another friend who had just given birth.  The list goes on.  Our emotions can trigger temporary symptoms and temporary conditions.

Feel free to listen to the radio interview.  Keep an open mind :)

-Sonya

P.S.  You can click on one of the link below.  Or there is an embedded block floating around in this post that you can hit play on.

IN SHORT ORDER -- DR. VINAYAK

by In Short Order

in Health

Sun, June 17, 2012

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LET'S TALK LYME! LET'S TALK ABOUT THE STRESS OF LYME! LET'S TALK ABOUT COMBATING BOTH!

Listen to internet radio with In Short Order on Blog Talk Radio

Great Advice

I took some notes from a conference call we had a few weeks back. Thought I'd share here.

Put away anything out of sight that reminds you that may have an illness. Supplements, medications, IV poles, etc.

Cells take information from thoughts. Emotions, stress or negative thinking is in the matrix or energy field surrounding the cell, responds to it. What you surround yourself with strongly influences your energy body or physical body.

If being in your environment reminds you of not feeling well (supplements, medications, etc). If that is in the environment, aren't you constantly being reminded that something is wrong?
If possible, find a way to get to nature. Backyard, grass, dirt, which is very healing. Kosher earth, the ground, will absorb a lot of info from your body and give you tremendous relief. Hug a tree. Bare feet on the earth. Allow the centers of your feet as anchors down into the earth and now you are very grounded. Your body finds alignment with the natural rhythms of mother earth. Your body finds it healing because it is the earths vibration.
The words we speak have an impact. The feeling behind the word is driving the creation or the manifestation.
Abraham (Abraham-Hicks) would say feeling is everything. (Here on my blog, there is an emotional scale that will help you choose feelings).
-Dr. Vinayak
www.electrumhealth.com

My "How To - DIY Videos"

Since I have been feeling so much better, I've been into making "How To" or "DIY" videos.  One is how to make Starbuck's Green Tea Latte and the other is how to make Starbuck's Iced Green Tea.


Here are 2 of the DIY videos I've made thus far.  I hope to make another one soon about how I make my own Liposomal Vitamin C.  I will do a blog post on that soon.  Any day now.  I'm working on it and have all the pics ready, so stay tuned!  Here is some info on the amazing benefits of liposomal Vitamin C.

Enjoy my videos!  But please be kind.  I am a total amateur and just love to save money where I can!

Are you sick?

In order to heal, you have to be ready for it. Are you ready? I am.

I am no longer a victim. I am no longer angry. One day I will take a look back and I'm thinking it will all be a valuable lesson that I had to learn. I know those of you deeply in the throws of dis-ease won't understand what I am trying to say or may even be offended by what I am saying. If you are offended you probably need to dig deeper and ask yourself some important questions. But one day you will wake up in the morning and it will hit you like an "Aha moment" (thank you Oprah) and you will see what I mean. Then you will start on your path to wellness.

You have to KNOW that you will get better. Know that within the next few minutes you will feel a little bit better than you do right now. Know it with every part of your being and forgive yourself when you doubt yourself. When someone (Dr., someone's blog, another sick person) tells you that this will be a long, hard battle, stick your nose in the air and tell them where to stick it. Because it won't be for you.

Emotional Guidance Scale

This is the scale Dr. V was talking about on the call today. 


Imagine an Emotional Guidance Scale with the good feeling thoughts on one end and the bad feeling thoughts on the other. 
And now, acknowledge that the end that feels good equals allowing and the end that feels bad equals resistance.  
So it is obvious that, depending upon your choice of thoughts, you could move toward either end of the scale.  
It is also obvious that the further you are from one end of the scale,  the closer you are to the other end.  In other words, this thought feels better; this thought feels worse.  This better feeling thought indicates allowing; this worse feeling thought indicates resistance............ The thing that matters most is that you consciously reach for a feeling that is improved.  The word for this feeling is not important.  


A scale of your emotions would look like this:


 1. Joy/Knowledge/Empowerment/Freedom/Love/Appreciation 
 2. Passion 3. Enthusiasm/Eagerness/Happiness 
 4. Positive Expectation/Belief 
 5. Optimism 6. Hopefulness 
 7. Contentment 
 8. Boredom 
 9. Pessimism 
 10. Frustration/Irritation/Impatience 
 11." Overwhelment" 
 12. Disappointment 
 13. Doubt 
 14. Worry 
 15. Blame 
 16. Discouragement 
 17. Anger 
 18. Revenge 
 19. Hatred/Rage 
 20. Jealousy 
 21. Insecurity/Guilt/Unworthiness 
 22. Fear/Grief/Depression/Powerlessness 


 A rather effective way of balancing your Energy is to continually reach for feelings of relief.  A feeling of relief always indicates an improvement in your vibration, and it always means a release of resistance, or an increasing of allowing.   Illness is all about resistance on some level.   You have been resisting your Natural Well Being up to NOW.


This is from Abraham-Hicks.

FREE Conference Call Every Wednesday

 

**Please note the new dial in phone number and access code below.


Dr. Vinayak and I have been doing these conference calls for emotional support every Wednesday @ 1pm Pacific Time (4pm EST).  This is my way of giving back to the Lyme community for helping me with donations and support throughout my struggle with the disease.  Anyone struggling with illness is welcome to join as this is not centered around Lyme.  This is centered on recovery and releasing your "temporary" conditions and letting go.

I missed last weeks call and really think I needed it.  It keeps me in line mentally with what I believe to be true about healing.  Healing can begin with healing our emotions and not focusing on our symptoms.  

Free Conference Call

NEW Conference Dial-in Number: 619-326-2700
Participant Access Code: 9758596#
IMPORTANT:  Please press press the *6 keys once you are signed into the call.  This will mute your phone.  Thanks!   And please try to call in a few minutes early as we will begin at 1pm PST / 4pm EST. 

Feel free to just call in and listen or ask Dr. Vinayak for emotional support for something specific.  If you would like to remain anonymous, feel free to use a fictitious name. 

To listen to previously recorded phone conferences, click HERE.  Make sure you are listening to it through Internet Explorer! Start at the bottom and work your way up.  If you would like to listen to only one, listen to the first one from February.  It explains more about Dr. Vinayak and how he helps to heal.  For more information on Dr. Vinayak, check out his website at www.electrumhealth.com

'See' you on the conference call!!

Conference for Lyme patients & their caregivers May 6th!

Contact

LymeDisease.org
LymeDisease.org
newsletter@lymedisease.org

When

Sunday May 6, 2012 from 2:00 PM to 5:00 PM PDT

Add to my calendar 

Where

Westin Gaslamp Quarter, San Diego
910 Broadway Circle
San Diego, CA 92101


Driving Directions 

It's so much more than Lyme disease

A conference for Lyme patients and their caregivers

Keynote speaker:

Dr. Richard Horowitz

Sunday, May 6, 2-5 pm

Westin Hotel, Gaslamp Quarter

San Diego, California

Plus a panel of Lyme-treating doctors, including Therese Yang, MD; Erica Lehman, MD; and Neil Hirschenbein, MD.

Dr Richard Horowitz has treated more than 12,000 chronic Lyme patients in the last 20 years, with patients coming from all over the US, Canada, and Europe to his integrative medical clinic in Hyde Park, New York. He has coined the term MCIDS, or Multiple Chronic Infectious Disease Syndrome, to describe chronic Lyme disease, because of all the different factors that can be involved.

Learn from Dr. Horowitz and other Lyme specialists how the combination of Lyme, coinfections, biotoxins, food allergies and other conditions can make it harder for you to get well--and what you can do about it.

On-line registration, through May 2: $40

Registration at the door: $45

Register Now! 

Tomorrow on Dr. Phil

Set your DVR's!  Tomorrow on Dr. Phil there will be a segment on chronic Lyme disease.  

Tomorrow on Dr. Phil Friday - April 13, 2012

Deadly Consequences

Dr. Phil’s guests say they’re dealing with serious illnesses that could have deadly outcomes. First, Annette says as a mother, she wants the right to euthanize her severely-disabled children, 42-year-old Jeffrey and 43-year-old Janet, who have been institutionalized for more than three decades with the rare genetic disorder, Sanfilippo Syndrome. Her only legal option is to remove their feeding tubes, which she says would lead to a painful and inhumane death. What would you do? Hear from acclaimed trial attorney Geoffrey Fieger on why he thinks the laws against euthanasia should be changed. Then, former model Stephanie Vostry, 25, says that she suffers from constant pain and seizures caused by what some doctors believe to be chronic Lyme disease, and others wonder if she's faking. With natural medicine providing minimal relief, hear how she says she's turned to self-medicating to dull her pain. Plus, chronic Lyme disease hits close to home for a Dr. Phil staff member and a San Diego weathercaster. 

The trailer for the show is below and then another snippet is below that.

Update on ME

I am still doing pretty darn great!  Working on getting even better.  Just wanted to let people know.  I don't think about Lyme disease so much anymore so I don't think to blog often.  So hearing nothing from me is a good thing.  I have more good days than bad now (THANK GOD)!!  I just need to exercise more!!!!  Trying to find the energy (sometimes just mental) some days and wish I had an exercise partner!  2 of my dogs are gimpy right now (chihuahua needs knee surgery and doberman pulled something playing ball).  My other dog is old so he just lays around.  Maybe I'll meet a fun friend that wants to exercise with me!  When the weather is nice I'm more motivated.

Anyway, life is good.  See ya Wednesdays on the conference calls!!

P.S.  A lot of you have left me wonderful comments of encouragement, your stories, etc over the years.  My comments only show up if you do it through Disquis for some reason.  I can't figure out how to fix it.  So if you wonder why your comments don't show up, that is why!!  I'm sorry!  I do get to read them though and I do appreciate them very much.  I hope I can get it fixed and I can respond to everyone.

Call For Healing Recorded Calls

This should take you to the recorded call from our Feb call and yesterday's call. 

To listen to one of the conference calls click here.

If you are interested in doing work with Dr. Vinayak, please note that the price of the Zyto Hand Cradle will be increasing from $200 to $300 on May 1st!!!  For information on Dr. Vinayak, please go to his website www.ElectrumHealth.com 


Looks like we will be doing these calls for Emotional support every Wednesday at 1pm Pacific Time until further notice.  

Release & Let Go Conference Call

UPDATE:  This call will now be held every Wendesday at 1pm Pacific Time until further notice!

Our last conference call was a very big success and we have had a lot of requests for follow up calls.  So Dr. Vinayak has graciously dedicated his time to helping.  And of course, the call is free.

Learn how to release and let go of chronic conditions and dis-ease.  Dr. Vinayak is back but this time the call will be for Emotional Support.  Come join listen in as you let go of your temporary conditions. 


Wednesday, March 14, 2012 at 1pm Pacific Time




Free Conference Call
Conference Dial-in Number: (712) 432-0800
Participant Access Code: 818978#

IMPORTANT:  Please press press the *6 keys once you are signed into the call.  This will mute your phone.  Thanks!   And please try to call in a few minutes early as we will begin at 1pm.  See ya there!

My Success Story

Today I accidentally opened an email.  The email was a cry for hope from a someone in one of my groups.  I just wanted to close the email and go about my daily business but I felt compelled, my compassion got to me and I had to respond.  I had to reach out to her and let her know that she would be okay.  YOU ARE GOING TO BE OKAY.  Considering the fact that this blog gets about 200 views per day, I figure there are a lot of people out there that need to hear words of encouragement, words of hope, and words of healing.  This is my success story and I wrote it just for you, Susan in California, and for you too:

Feelings of hopelessness seemed to come and go for me.  Now I am 100% confident in my full recovery.  Not just hopeful.  I don't even feel like I need hope anymore. However there were times where I was suicidal.  Literally to the point where I told my husband to hide the pain meds from me.  In the midst of my fathers battle with cancer I had to burden my overwhelmed mother with the fact that I was suicidal.  But it wasn't all the time, it was during particular times of the month when I would have a flare of symptoms.  April and August of last year were the 2 hardest for me mentally & emotionally.  Those 2 "A" months.  Little did I know that in just 3 months my whole world would change and I would be doing so well.  My point is this:  just when you think it can't get any worse, sometimes it gets worse!  But then it gets better. It always gets better and you come out of it.  You have an upswing where you start to feel better physically or you just aren't suffering anymore and with that comes the mental lift.  The doom and gloom seems to magically disappear and you begin to see the glimmer of the light shining at the end of your tunnel.
 I know I'm not back to where I want to be but I'd say that most days, I'm 85% "there" and making progress.  This month has been my best month yet with the return of exercise.  I went to the beach on a nice warm day, I got started on my vision board, I got my bike fixed up for the next time I feel completely "un-sick", I signed up for yoga one day a week at a local studio, I found a local doctor to monitor me, run some tests,and help with the damage Lyme caused to my body (hopefully) so I can get stronger and stronger, I'm cooking dinner almost regularly, but most importantly, I'm able to go out to dinner, go visit my parents and ailing grandfather, make some plans and keep them, walk my Doberman on my own, drive alone.....  You get the picture.  I'm making the most out of my life.  My short term goal is to gain back some muscle and be able to exercise regularly as part of my recovery.  The ultimate goal would be able to go back to work full time.  That would be amazing.
I still have bad days, not too long ago, maybe a month and a half ago, I spent about 10 days in bed or the on couch.  It was discouraging, somewhat depressing, and a little scary.  I went into fear mode and had to pull myself out of it.  My practitioner, Dr V, is good at helping me do that.  But the bad days aren't nearly as bad as they were.
 Everyone can get better.  Seems it just takes some time and a lot of trial and error.  I should have trusted my instincts to got off the antibiotics much, much sooner.  Having my PiCC line removed was the best decision I have ever made.  I should have ripped it out a year sooner.  But I was fearful.  I read all the websites and blogs.  They told me that I had to be really sick for a long time.  That Lyme disease was a long rocky scary, painful road.  It was for me.  If you look back on this blog it goes back to the very beginning in 2009.  There are some pretty low posts and some scary posts at that.  In regards to stopping antibiotics, this last time, I trusted my body and just demanded it be over with.  I'm glad I did.

Not even close to being finished, but it is a start!

FREE Kindle book! Hurry, ends @ midnight!

One of the best books written on the subject of Lyme disease.  I just found out about this.  You only have until midnight tonight (Pacific time?) to download the free Kindle copy.  BioMed Publishing Group is offering it free!  YAY !  I got mine.  Go gets yours here.  You don't need a Kindle, you can read it on your computer by downloading one of the free Kindle Reading Apps.

Click here to purchase the actual book version of this best selling book.

Conference Call Recording

I couldn't figure out how to download the recording to my blog so this is the 2nd best thing (it's just an MP3 or wav file so if someone knows how, please let me know).

You can listen to to the conference call unedited by calling in to the following phone number and then entering the pin. I apologize for the wait,  I have had a huge response to this and I hope it can help someone in some way.  There is  no charge unless you are charged for long distance.  The call is about an hour.


Dial - (712) 432-0899 


Enter Access Code - 818978#

For more information on Dr. Vinayak please check out his website.  Or you can send an email to chronicallyhealthy@gmail.com and I will forward any emails to him.  I have had a big response to this conference call so it may take a couple of days to get a response.

To answer a few questions that have been directed at me:

• NO, I do not think this is a cure for Lyme disease.  I think it is a tool.  I am not making any claims and I am not a medical doctor.  I just promised myself that if I found something that worked for me I would shout it from the roof tops.
• I feel that I am about 80% well since I started seeing Dr. Vinayak back in the beginning of December 2011.
• I have seen him about 8 times since December and my last session we did right after the conference call remotely using a hand cradle here at my house.  Out of the 8 or so sessions, only 3 have been regular Zyto balancing sessions, the rest have been EVOX. 
• EVOX is Preception Reframing (please read more below).**  
• I still have bad days and I still have a Lyme cycle (flare).  The bad days are few and far between and the flare time is DRASTICALLY different.  I am not suffering anymore.  I suffered.  The pain and sickness was unbearable to me and it was a life of just existing alone.  

I am able to do things in my life like shower daily, get dressed daily, do my hair and make up, go out to dinner with my husband, go to the movies, go window shopping, hit the mall (for the first time in December), walk my dogs, start exercising (very lightly), help out my step kids, visit with friends, clean my house, etc.  I attribute all of this success to ripping out my PiCC line, getting off antibiotics (I think the Bionic 880 helped me do that and I may revisit that treatment sometime soon to get the other 20%), and to seeing Dr. Vinayak and balancing my body holistically.  Here is a picture of me yesterday.  I have gained back the weight I had lost, well most of it, I don't want the rest!  I was down to 97 pounds and if you know me it was a big issue of self esteem for me being so skinny and looking so sickly.

 I just posted this pic to Facebook yesterday, my husband snapped it of me as we were getting ready to go out to lunch and swing by Costco.

One of the kids and I  (and Martini) a couple of weeks ago.

**EVOX is on the Zyto and it is Perception Reframing.  It is healing one's personal trauma's.  After I started doing it someone pointed out that it is mentioned in the book Insights Into Lyme Disease Treatment by Connie Stasheim (pages 149, 165, 267).  I was able to read the section written by  Dr. Lee Cowden and I wish I could quote what he wrote.  Something along the lines of the EVOX & Zyto helping one heal from Lyme disease.  It was much better than that, but I haven't eaten yet today and I can't remember.

Here is an article written by Better Health Guy, Scott Ferguson where Cowden mentions EVOX

Here is Scott again on his blog explaining his ongoing treatment and he uses Zyto

Be Well!!  Be Happy!!

xoxo

-Sonya

Conference Call for Healing

Hey everyone,

I'm inviting you to listen in on a conference call I asked my practitioner to do with me. My practitioner is Dr Vinayak. You can read his bio on his website electrumhealth.com

How I found Dr. Vinayak:

I had an online friend with Lyme disease make a truly miraculous recovery after discovering him. I was very concerned about her and her family so I would try and keep up with her in a private Facebook group I am a part of. I noticed she had left our private Lyme group. I hadn't seen her post in a couple of months. So I went to her Facebook page and scrolled down and noticed she was living her life as a healthy person. She was volunteering at her children's schools, she was cooking meals and cleaning her house. She would take pictures of herself out and about. It intrigued me. So I made an appointment with her practitioner. I felt I had nothing to lose and I was desperate.

Low and behold, here I am. I would say I am at about 80% functioning. When I am able to work a full time job and be athletic again, I will be at 100%. I just started doing restorative yoga at home so I'm on my way.

I promised myself if something helped me get well, I would shout it from the roof tops. So here I am and this is me shouting. By doing this conference call. There is nothing in it for me and I do not profit in any way except to hopefully inspire and help others and maybe open a door they hadn't opened before.

Not everything works for everyone but I hope somehow this can help even one person get closer to getting their lives back.

On Tuesday, February 7th at 1pm (Pacific Time), call in to the number below:

(712) 432-0800

Enter code 818978# when prompted

Once on the call please press *6 immediately to mute your phone. To unmute your phone, press *6 again to speak and then you may enter it again to mute. 

There is no fee for the call unless you are going to be charged long distance by your phone provider. Seems most people have unlimited long distance these days on home phones or cell phones. 

I have no idea how many people we will be having on this call. Individual questions can be asked via email given out at the end of the conference call. 

I hope this goes smoothly!