So last week I felt like crud until the day before we were going to leave for Vegas. Hubby & I were up late preparing to leave for the next day. Thankfully I started feeling much better as I was hoping I'd be up for some site seeing. We were making it a family vacation & wanted the teens to enjoy themselves. It was about 105 degrees & I don't do well in the heat, but I did OK. When we arrived in Vegas we headed straight to the MedSonix place to do my first treatment. I was told that for lyme I would need 1 hour treatments.
My step-son Evan was walking like he had been on a horse for a couple days so we put him in with me for the first half hour. He started a rigorous baseball practice for All Stars & his legs were super sore. He was walking normal after that & said he felt much better. We kept asking him for the rest of the day because we weren't sure if it was just a placebo effect. At the end of the long night of site seeing that night, he said his soreness was returning a little bit. But by morning he was fine. Hmmmm....
I noticed nothing after my first 1 hour session. I had pain in my legs that night while walking around but we wanted to get in as much of the attractions as we could. Needless to say we got very little sleep for the 2nd night in a row. I don't do well without enough sleep & felt ill when I first got up the next morning for my 2nd appointment, but once I started moving I felt much better.
I forgot to mention that my hips, knees, & hand joints had been really bothering me lately. Started about 2 months ago & had been progressively getting worse. I was in tears from my hip pain 2 days before we left for Vegas & tried to finally plunge into my Ketamine pain meds. I realized they were long expired as they were compounded & the pharmacist said he didn't know what would happen if I took it anyway. So I didn't. I just popped a 800mg Motrin. In a couple hours I was feeling better. But this joint thing is concerning me because it has never been an issue for me up until the last 2 months.
Okay, so hips & knee really bothering me while on my way to 2nd appointment. First half hour I was in with a group of people that go there every Monday & Thursday. They all knew each other & were so friendly! They explained to me how much MedSonix has helped them & why they come. There was a husband & wife there and they brought along his father & her uncle. There was another gentleman that sat next to me that is one of the spokespersons for MedSonix & he was explaining things to me. He used to be the host of Real TV. Remember that show? I loved watching it & still catch a rerun anytime I'm channel surfing & it's on. Everyone was asking about lyme disease. 2nd half hour treatment a nice older couple came in. It was their 2nd day coming. They had come the day before & said it helped them so they decided to come again the next day. I am not sure exactly what they were there for but I do know that the gentleman said that it helped his grumpy disposition. Maybe I should have had my hubby do a session or two ;-) After that session my knee wasn't bothering me anymore. Hips still sore & stiff. But as I walked out of the building to the car, I said to my husband, "Despite little sleep for 2 days & this heat, I'm feeling better!" We went on to site see for hours again that night. Way less pain, again, little sleep.
Woke up for 3rd & final session feelin' good. Did one hour, still feeling great. I was so surprised I was able to walk & walk & not rest at all during this entire trip! Went to the pool for a bit in the heat with my step-son & we sipped virgin pina colada's & margaritas. Then we needed to get our butts on the road home. We didn't want to leave!! Such a great time!
I have been home for 5 days & have been doing great! I said to my husband that I wanted to exercise! I have been having no trouble walking up the stairs or getting off the couch. My joints have not hurt me AT ALL. I do not know yet if it was the MedSonix or the way my lyme cycles. I know this time of the month I am usually doing pretty good anyway. I see my doctor out in Malibu tomorrow & if hubby isn't too busy with work we are going to hang out by the beach for a bit before we head home in MONSTER LA traffic. I should be going back to do at least another session (three 1 hour treatments) of MedSonix next month. I will let everyone know how it goes :) As it is something that you would need to do monthly for a while. I don't think MedSonix is a cure for lyme disease, but I do think it could be a great tool. It reduces pain, reduces inflammation, & increases circulation. It is totally non-evasive. You just sit in front of a box that makes noise. If you don't like the noise you put on headphones that play relaxing music. That's it!
What exactly is MedSonix? http://medsonix.info/
To to their website for testimonials & videos. They have the place in Las Vegas, NV & Naples, FL.
Wednesday, June 30, 2010
Friday, June 18, 2010
Scarlet saying good morning.
This is my beautiful baby girl Scarlet. Rhett (her brother) said hello too, but I can't figure out how to put up both pictures on the same post. She is somewhere between 2.5 - 3 months old. Notice they still have blue eyes & their beaks still have pink on the sides. They just learned how to eat on their own about a week ago but still I still need to feed them every once in a while (it's like they forget). But they are the SMARTEST creatures! I love them more & more every day. Today they learned how to fly when I call their name & land on my arm.
Soon they will be old enough to go out & play & fly in the trees during the day & come in before dusk so they don't get eaten or bit my mosquitoes. One of these days I'll post a pic of them the day I found them. You'd hardly recognize them!!
Friday, June 11, 2010
Trying an alernative treatment & my baby crows
June 23-25 the fam bam & I are going to be in Las Vegas to do an alternative treatment called MedSonix. I have personally met two people randomly that recommended it. You can read more about other's experience at lymesucks.org & Better Health Guy. I am very excited to try something non-evasive. It's basically a box that produces a low frequency acoustical sound wave that is supposed to reduce inflammation in the body, reduce pain, & increase blood circulation.
I am also excited to get out of town. I have never gone to Vegas without going to the clubs, casinos, & gambling. And since we don't have the money for that kind of thing (nor do I have the energy or ability to party), we are taking the kids! A little family vacay! YAY! So we got a cheap room at The Orleans for $35 a night. Going for two nights & found a bunch of free sites & activities through the Vegas.com website.
My mom is going to come stay at my house to dog & crow sit.
I probably forgot to mention that I saved two baby crows' lives over a month ago & they are still living with us until they can be released during the day & called in at night for safety reasons (West Nile mosquitoes & other predators). That is if I can get them trained. They were tiny babies with no feathers when I found them & I have hand fed them. Crows don't learn to eat on their own until about 2.5 months old, & they are just now learning. But they are a handful so I can't wait for them to be able to go outside for the day (and hopefully come home at night). Wish me luck!
I am also excited to get out of town. I have never gone to Vegas without going to the clubs, casinos, & gambling. And since we don't have the money for that kind of thing (nor do I have the energy or ability to party), we are taking the kids! A little family vacay! YAY! So we got a cheap room at The Orleans for $35 a night. Going for two nights & found a bunch of free sites & activities through the Vegas.com website.
My mom is going to come stay at my house to dog & crow sit.
I probably forgot to mention that I saved two baby crows' lives over a month ago & they are still living with us until they can be released during the day & called in at night for safety reasons (West Nile mosquitoes & other predators). That is if I can get them trained. They were tiny babies with no feathers when I found them & I have hand fed them. Crows don't learn to eat on their own until about 2.5 months old, & they are just now learning. But they are a handful so I can't wait for them to be able to go outside for the day (and hopefully come home at night). Wish me luck!
Thursday, June 3, 2010
So far so good with Biaxin
So we added Biaxin last week at my doc appointment. It was delivered overnight and within 6 hours of taking the first dose (500mg tablet) I started getting a buzzing in my ear. The dreaded TINNITUS that caused me to stop taking Zithromax right away. That stuff can be permanent & can even cause hearing loss. I couldn't deal with a constant ringing in my ears for the rest of my life. Never ANY silence?? No way. But I decided not to bail on it. I need to be able to take things to kill the different types of bacteria that have invaded my body. So like a trooper, I took the second dose of the day. And besides that god awful metallic taste in produces in the back of your mouth, I am tolerating it. The tinnitus hasn't gotten worse, and I can only hear it when I am laying with my head on the pillow & another pillow over the other side of my head (the way I block out morning light that shines through my blinds).
I ordered another 30 days worth of Biaxin from Westaid Pharmacy & paid only $50 for 60 tablets. And they overnighted them to my house FOR FREE. They rock. Nicest pharmacy I have ever called & they are on the ball. So again 1-800-939-9495.
I haven't herxed or anything from this new antibiotic. And I wonder if I will because I am using it to treat Mycoplasma. So far, so goood.
Oh, we did another garage sale last Saturday and I made $517! YAY! Then another $50 yesterday from a donated dryer & I still have a couple of really nice desks to sell. I need to put them on Craigslist. Should get another $125. One is brand new in the box (glass top computer desk). The other is a 3 piece solid wood set. Desk, hutch, & file cabinet.
I still haven't started the True2Life detox yet because I didn't think it was a good idea to start two new things at once. Being that I was starting the antibiotic. So I will have to pick a day to start the detox. Maybe today??
I ordered another 30 days worth of Biaxin from Westaid Pharmacy & paid only $50 for 60 tablets. And they overnighted them to my house FOR FREE. They rock. Nicest pharmacy I have ever called & they are on the ball. So again 1-800-939-9495.
I haven't herxed or anything from this new antibiotic. And I wonder if I will because I am using it to treat Mycoplasma. So far, so goood.
Oh, we did another garage sale last Saturday and I made $517! YAY! Then another $50 yesterday from a donated dryer & I still have a couple of really nice desks to sell. I need to put them on Craigslist. Should get another $125. One is brand new in the box (glass top computer desk). The other is a 3 piece solid wood set. Desk, hutch, & file cabinet.
I still haven't started the True2Life detox yet because I didn't think it was a good idea to start two new things at once. Being that I was starting the antibiotic. So I will have to pick a day to start the detox. Maybe today??
Thursday, May 27, 2010
Bicillin injection - Finding blood!
Okay, this was the first try. Sorry for the F Bomb. But if you find blood, & you inject or forget to aspirate, it can kill you. Means you are in a vein.
My laptop has been down . ..
Well, my husband broke the hard drive in my laptop yet again so I have been without one for over a month. I haven't been feeling so great, so I haven't been on the computer much. That would explain my absence from my blog.
A recap of the past couple of weeks:
Got sick about 4 days before the fundraiser/awareness walk so I couldn't make it. My husband & his family & a couple of friends went anyway. My dad was out of town visiting his mother & I was feeling so sick that I had my mom come here to take care of me instead of going to the walk. Nicest part of the walk was one of my BFF's learned a lot about Lyme Disease and I think that helped her to understand me more.
I never heard from the walks coordinator after that, so I didn't get any help with my fundraising. Oh well, you win some, you lose some.
So I ended up spending 8 days in bed. That miserable hangover feeling. It sucked. And then we had the garage sale on Saturday. I started to feel better a few days before & on that day I did well. We made $537! It was enough to pay for a month of one of my antibiotics. I need to figure out more fundraisers though because I need many thousands of dollars!! Doing another garage sale this weekend. Not as much stuff, but I am hoping some how some people will donate more stuff by tomorrow.
True2Life donated one of their 8 Day Liver Detox Kits to me. That's cool! I felt great after my last detox. I was going to start today but started having pain in my lower right abdomen. Could be my appendix, so I am holding off on the liver cleanse until pain is gone. Appendix is attached to your large intestine & this cleanse on the 2nd day brings on a lot of bowel movement. So . . .. we wait a bit.
I went to see my doc 2 days ago in his Beverly Hills office. I like him. He's not my LLMD, but he takes my insurance. He's keeping me on Bicillin & adding Biaxin for Mycoplasma. Doing a week trial run to make sure it doesn't cause tinnitus like zithromax did. The tinnitus showed up after 2 days on Zithro & stopped after I stopped the medication (3 days later). It can be permanent & it was very unpleasant. I forgot to talk to him about how to treat the Q Fever which can become chronic also. Doxy? UGH! I couldn't take that. Make me drop weight like a wrestler or a super model.
So we are waiting and seeing. I am happy to be attacking my known co-infections now. Maybe this is the boost I need. Cross your fingers that I can tolerate it. Doc also took some blood work because I have been having abdominal pain & he said I should be having monthly blood draws. I will go to him monthly, which is fine because my insurance pays for it. It's a long drive, but we're going to stick with going to his Malibu office so we can see the ocean at least. It's lovely.
I am happy to report that my Malibu/BevHills doc was able to find me lower cost Bicillin! YAY! I was paying $700 for 10 injections at McGuff. I am now paying $525 for 10 with free overnight delivery via courier to my door! WestAid Pharmacy in LA. The Biaxin was going to cost me $269 at Walgreens but is only $60 at WestAid! Here is their number if you ever want to price them 1-800-939-9495
I hope everyone is doing well. HANG IN THERE!! My headaches are NOT my friend!
A recap of the past couple of weeks:
Got sick about 4 days before the fundraiser/awareness walk so I couldn't make it. My husband & his family & a couple of friends went anyway. My dad was out of town visiting his mother & I was feeling so sick that I had my mom come here to take care of me instead of going to the walk. Nicest part of the walk was one of my BFF's learned a lot about Lyme Disease and I think that helped her to understand me more.
I never heard from the walks coordinator after that, so I didn't get any help with my fundraising. Oh well, you win some, you lose some.
So I ended up spending 8 days in bed. That miserable hangover feeling. It sucked. And then we had the garage sale on Saturday. I started to feel better a few days before & on that day I did well. We made $537! It was enough to pay for a month of one of my antibiotics. I need to figure out more fundraisers though because I need many thousands of dollars!! Doing another garage sale this weekend. Not as much stuff, but I am hoping some how some people will donate more stuff by tomorrow.
True2Life donated one of their 8 Day Liver Detox Kits to me. That's cool! I felt great after my last detox. I was going to start today but started having pain in my lower right abdomen. Could be my appendix, so I am holding off on the liver cleanse until pain is gone. Appendix is attached to your large intestine & this cleanse on the 2nd day brings on a lot of bowel movement. So . . .. we wait a bit.
I went to see my doc 2 days ago in his Beverly Hills office. I like him. He's not my LLMD, but he takes my insurance. He's keeping me on Bicillin & adding Biaxin for Mycoplasma. Doing a week trial run to make sure it doesn't cause tinnitus like zithromax did. The tinnitus showed up after 2 days on Zithro & stopped after I stopped the medication (3 days later). It can be permanent & it was very unpleasant. I forgot to talk to him about how to treat the Q Fever which can become chronic also. Doxy? UGH! I couldn't take that. Make me drop weight like a wrestler or a super model.
So we are waiting and seeing. I am happy to be attacking my known co-infections now. Maybe this is the boost I need. Cross your fingers that I can tolerate it. Doc also took some blood work because I have been having abdominal pain & he said I should be having monthly blood draws. I will go to him monthly, which is fine because my insurance pays for it. It's a long drive, but we're going to stick with going to his Malibu office so we can see the ocean at least. It's lovely.
I am happy to report that my Malibu/BevHills doc was able to find me lower cost Bicillin! YAY! I was paying $700 for 10 injections at McGuff. I am now paying $525 for 10 with free overnight delivery via courier to my door! WestAid Pharmacy in LA. The Biaxin was going to cost me $269 at Walgreens but is only $60 at WestAid! Here is their number if you ever want to price them 1-800-939-9495
I hope everyone is doing well. HANG IN THERE!! My headaches are NOT my friend!
Saturday, May 8, 2010
Living
I have been doing so well. So well in fact that my chief complaints are only sleepiness & muscle weakness. I am still worn down at the end of the night & if I do too much. But I'm getting there.
Thank you detox
Thank you Nuriche
Thank you Bicillin
Thank you Dr. B
Thank you Dr. P
Thank you hubs (even though you are a pain in my butt sometimes)
Thank you mom
Thank you to all my supportive friends on Facebook & here on online outer space
Thank you to everyone who told me not to give up
(all in no particular order, just what came to mind)
Now I need to raise money to treat Q Fever, Mycoplasma, Babesia & any other bastards that are trying to kill me.
May is Lyme Disease Awareness Month
We are doing a fundraiser/awareness walk up in Hesperia, CA on May 15th to raise money for myself and a few other "lymeheads" (someone on Facebook gave me that term & I cannot remember who).
I am doing a huge garage sale & asking friends, family & friends of friends to donate items to sell that will happen March 22nd.
My friend Leslie says she will help me to plan a poker party fundraiser. Now that sounds like fun!
And the grand finally. .. . . . . a big huge NATIONWIDE RALLY for Lyme Disease. Date TBA. If you are interested in organizing in your area, please let me know! This is very important & no matter how sick you are, we need your support. Get your friends, you family, your co-workers, your neighbors in on it.
xoxo! To life!!!! Cheers.
Thank you detox
Thank you Nuriche
Thank you Bicillin
Thank you Dr. B
Thank you Dr. P
Thank you hubs (even though you are a pain in my butt sometimes)
Thank you mom
Thank you to all my supportive friends on Facebook & here on online outer space
Thank you to everyone who told me not to give up
(all in no particular order, just what came to mind)
Now I need to raise money to treat Q Fever, Mycoplasma, Babesia & any other bastards that are trying to kill me.
May is Lyme Disease Awareness Month
We are doing a fundraiser/awareness walk up in Hesperia, CA on May 15th to raise money for myself and a few other "lymeheads" (someone on Facebook gave me that term & I cannot remember who).
I am doing a huge garage sale & asking friends, family & friends of friends to donate items to sell that will happen March 22nd.
My friend Leslie says she will help me to plan a poker party fundraiser. Now that sounds like fun!
And the grand finally. .. . . . . a big huge NATIONWIDE RALLY for Lyme Disease. Date TBA. If you are interested in organizing in your area, please let me know! This is very important & no matter how sick you are, we need your support. Get your friends, you family, your co-workers, your neighbors in on it.
xoxo! To life!!!! Cheers.
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