So today is the 4th day in a row that I have been feeling decent. Yesterday I was tired, and had a headache, but nothing compared to the swollen brain feelings I sometimes get. I get my energy at night. Somewhere between 7pm & 8pm. What a bummer. That's when I want to leave the house & go somewhere. Anywhere. Last night at around 9:15pm my step son & I took off & went to the grocery store. I wish I felt like this during the day. Oh well.
I am going to see my WONDERFUL LLMD (Lyme Literate Medical Doctor) on Tuesday and I am excited to see her. She lowered her fees to accomodate the economy. So my follow ups are only $175. When I tell people, that I have the most caring doctor, I mean it. She is so intelligent & caring, that I like going to see her. I am keeping a notebook to remember any questions I may have for her. And am interested in hearing anything new she has learned since we last spoke. I last spoke with her beginning of December. She called me out of the blue to check on me. I LOVE THAT. I have recently referred 3 people from my various online Lyme connections to see her. 2 people for sure made appointments. I've heard back from one & the feedback was great. So happy she is thrilled with my LLMD.
I just ordered a new supplement today called Lauricidin. It was recommended to my husband for me by one of his clients. She just learned I have Lyme Disease & swears by it. I did some research & saw several people with Lyme take it & I saw nothing but great reviews. So while it's not a cure-all, it can't hurt. It is inexpensive so I am looking forward to trying it. A representative from the company responded to an email I had sent & they said to start SLOW!! You can experience a herx reaction from it. So I will start very, very slow. As I am very cautious. And quite wimpy at that! It took me 3 months to even try a little bit of my Artemesia & Clove. But eventually I gave in & am doing great on it. I take it 2 weeks on, 2 weeks off. Found a cheaper place to buy it online too. I'm good at that!!
I'll let everyone know of any changes made to my protocol one I see my LLMD. I may also be taking my Western Blot on Tuesday. Someone in her office will draw my blood becuase I couldn't find a lab to do it here. No one will do an outside labs test kit. Yet another hurdle for the victims of Lyme Disease. I kind of want to take my test when I feel sickest (which was for the 9 days I was in bed), so I will see what my doc thinks and may just have to drive out to see her when I'm sicker than I am lately. The test is very expensive & I raised the money on Facebook & I don't want to "waste" the test if timing matters. Wish me luck!! Pray for a CDC positive result so that I can get my PiCC line :)
Oh, I also recently purchased the DVD called Rethinking Caner. I had stumbled upon it several times in my research. Parker Posey, the actress, also has lyme & left conventional medicine to try holistic alternatives. She is promoting the DVD as something that changed her mind. I ordered that and a book about Detoxing. There is one man in the documentary that has lyme & recovered using the methods. The DVD is based on the book of the same title: