Feeling Better

Oh boy, did I have a hard couple of weeks.  But I just wanted to let everyone know that things are so much better.  I have come out of my LONG lyme cycle and got out of the house today.  Went to the library today with the family, walked the dogs to the park to play fetch, and made it out to the store to get some household necessities.  It felt good.  I did get exhausted, so by the time we got home, I had to lay on the couch for a while.  Hubby made tostadas!  YUMM!  Then me & the 14 year old hung out and watched Mega Mind.

I changed my PiCC line dressing today with NO drama.  I was able to get it done quickly & without much stress.  My husband was standing by to help out.  Just need to figure out how to get the stat-lock changed.  Haven't had that changed since I last saw my FABULOUS NURSE!

Kids are doing SO WELL.  Our family has been so whole since we moved!  We were a bit concerned about our 14 year old because he seemed a little depressed.  He told us the move was hard on him (having a little trouble making friends & didn't make the baseball team).  But we found out later that it was because his girlfriend stopped talking to him.  Takes a while to get things out of kids.  However, he just started on the track team & got his uniform and his mom bought him his running spike shoes.  She has come back into their lives (I hope for good) and appears to be making an effort.  It was a looooooong year for them to not have her around.  I hope she sticks to it.  She is even driving out there a couple times a week to see them.  I really hope she keeps at it!!  They need it.

So life is great with the kids and it really makes a huge difference in our household.  Everyone is happy - together, loving, laughing, spending quality time together.  Amazing what a little change can do.  We don't ever want to look back!

Amazon

Do you use Amazon to shop?  Whenever you use my link to shop on  Amazon, you will be contributing to my lyme disease treatment.  I receive a small percentage of each purchase at no additional cost to you.


Please bookmark my link & share it with your friends & family if you will.

http://tinyurl.com/AmazonSonya

Thank you!!

I Figured Out What Happened To Me!

Watch this video of a Facebook lyme friend of mine. She is getting a Rocephin push directly into her PiCC line. I do an IV drip which takes about 30 minutes and is in a gravity bag with Sodium Chloride. It is a bit easier on the body. I finished my last IV infusion about 1am. Went to bed around 1:40am. Woke up at 6am, knowing something wasn't right.

Things Are Getting Worse

I hate to be "Debbie Downer", however, things have gotten worse when it comes to my health.  I woke at 6am this morning (I usually sleep a lot longer) and didn't know why I was wide awake.  As I laid there trying to fall back to sleep, I noticed an odd back pain.  It was around my bra line.  It was pretty painful, but I just figured I needed to change positions.  Nope, it just got more intense.  I have had a lot of back pain in my life, but this was different.  This was not skeletal or muscular as usual.  It was just intense upper back pain.  I also started to feel sick.  I didn't feel "right".  So I woke up my husband and told him I wasn't feeling well.  He asked what was wrong, I told him my back hurt & asked him to rub it.  It didn't help.  I thought, maybe I just need to use the restroom.  At the same time, I started to get hot, so I asked my husband to find the thermometer.  I had a problem with my PiCC line while changing my dressing on Thursday.  Since I no longer have a nurse, it makes the weekly dressing changes scary.  My line hole was red & it's usually white like a callous.  It was also irritated. Concerning.  So I thought the way I felt could be that I possibly had sepsis.

More on Buhner Protocol; Knotweed

This is a GREAT publication called Public Health Alert.  I stumbled upon it researching the Buhner Protocol.  This is an update on the protocol from April 2010.  I'll copy & paste some snippets below.


This is the entire article:  http://www.publichealthalert.org/pdf/2010_4.pdf



Buhner "Core Protocol"
*Japanese Knotweed (Source Naturals Resveratrol with 500mg Polygonum cuspidatum per tablet)  
1-4 tablets 3-4 times daily for 8-12 months
*Cat's Claw - 1-4 tablets 3-4 times daily for 2-3 months then 2-3 capsules three times daily
*Eleutherococcus - 1/2 to 1 teaspoonful upon rising and at lunch
*Astragalus - 1000mg daily; not to be used in chronic Lyme


Note: Each protocol should be customized to the
unique needs of an individual person.  Though the
above represents the foundational protocol, there
are a number of adjunct options that may be considered.  See the book "Healing Lyme" by Stephen
Harrod Buhner for more information.

"Japanese Knotweed shuts down the inflammatory pathways initiated by the spirochete."

"Knotweed, ....affects the exact pathways that are problematic in Lyme disease.  It is very specific for the inflammation related to Lyme disease."
"Knotweed crosses the blood brain barrier.  It is specific for inflammation in the meninges.  If a person presents with a stiff neck and headaches as part of a neurocognitive Lyme presentation, Knotweed is very specific for these symptoms.  It is a potent antioxidant and has protective effects on the brain. It calms the central nervous system and helps with arthritis symptoms in Lyme disease.  Knotweed is an herb and drug synergist meaning that when it is used with antibiotics, it makes them  powerfully effective even in cases where they previously failed.  "If I could get every
Lyme-infected person to do one thing, it would be to take Japanese Knotweed along with their antibiotic therapy.  It increases the effectiveness by at least double," he said.


Ok, so from now on I am going to be taking Knotweed and you should too!


Here is the link to the Source Naturals on iHerb.  Use this coupon code at checkout for $5 off your first purchase  YAF559

Life

I've been having a rough time.  My lyme flare (cycle) hit me HARD this time.  I was out of my head crazy.  So moody & miserable & unhappy.  Thank GOD that's over.  But I'm back to feeling crummy.  Not horrible & not suffering like I was.

I'm lonely though.  My wonderful husband is working his tail off and trying to support his family, so I am at home 24/7 alone.  Well, I have my pets.  My kids are busy with their lives.  My poor 14 year old is having a hard time with this transition.  He is a freshman & was the most excited about the move out of the 2 kids.  He didn't make the baseball team and was really bummed.  Made me sad.  I would sneak over to the high school where no one could see me & watch him.  I don't know much about baseball, but they already had their team, so they told me he would have to be better than average.  It just made me so sad.  At least I got them to give him a chance.  He is also having trouble making friends.  He isn't the most social guy (so I've learned from my daughter & from talking to him about it).  I am going to help him look into some clubs at school.  Things he can enjoy & maybe share an interest with.  We drove out last weekend & picked up one of his friends to spend the night.  That was good for him.  I am friends with his mom & so she then came the next day to get him & we had a nice visit.

The 16 year old wasn't too happy about the move, but we managed to introduce her to the" most popular girl in school" so now she is really popular.  She has a lot of friends.  And one moved in right next door!  SCORE!  She seems pretty stoked about it.  She is also on the swim team & has made a friend there.  There is also a boy that showered her with gifts for Valentine's Day.

All in all though this move is for the best for my family.  Saving money, a new community.  The kids' biggest complaint is that the school is older (their old school was brand new) so they call it "ghetto".  My kids have been raised very spoiled up until recently.  They are adjusting great.  I will try to find ways to get the 14 year old some socialization.  My 16 year old has done a 180.  Her attitude has changed, she is talking to me more & spending time with me.  We are laughing and she isn't just hiding in her room all the time.  There is a HUGE difference in her behavior & how she treats her family.  We are feeling more like a family unit than we ever have.  This makes me happy. :)

My parents came by last weekend even though I had told them I wasn't up for company.  It was a nice surprise.  I had cancelled plans 2 weekends in a row with them because I was feeling so terrible.  It's an hour drive each way for them.  Think maybe my mom was a little concerned?  I don't know what's going on with me......

I started a new supplement that I will tell everyone about later.  I want to see if it effects me or not first.  Today is just my 3rd day.  I actually took a nap yesterday which hasn't really happened except maybe twice in the past year & a half.  I have fatigue, but the inability to sleep.  I could sleep today even, right now.  Maybe I'll try it.  Wonder if that has to do with the supplement.  Can't imagining something working so quickly.  But it is supposed to help with sleep.  Even wanted to go to sleep last night by 10pm but it didn't happen because I forgot I needed to do an infusion, you have to take it out of fridge & allow it to warm up first, etc.  Oh well.

Look how I organized my supplements & IV supplies.  Looks MUCH better next to my bed & it's easier to carry than my big round plastic baskets.  Made me quite happy last night!

Heparin, Saline, alcohol wipes, & IV caps. :)

This one has my initials embroidered on it.

I put the meds I take twice a day in the side pockets.  I still have plenty of room to add more if I need to (hope not).

To check out my catalog, go to www.mythirtyone.com/SonyaNelson

Happy Valentine's Day

I got a bouquet of flowers & a card for Valentine's Day.  I didn't get anything for my husband.  Haven't been able to leave the house.  I guess I could try to find something in the kids' stuff to make him one.  I want to try to go to the store (we'll see, not looking good for me today) and get some candy, etc for the kids.  That's all they need is more candy!  ;)

Buhner Protocol info

I ran across this Public Health Alert online while researching more of the Buhner Protocol. Since I am drinking the Lyme Defense tea based on the protocol, I wanted to learn a little about it. The book was published back in 2005.  I have yet to pick it up.  Think I'll try to check it out at my local library.

There is some good info on Lyme disease in this entire health alert "newsletter". Definitely worth reading.

Public Health Alert

Feeling sorry for myself

Here I am, sitting up late by myself.  My family has gone to bed.  I'm putting off doing my IV.  Last one for the week.  YAY.  I am just down in the dumps & crying.  I was just thinking I wish I had someone to talk to.  It's odd though, I never, EVER talk to anyone when I feel this way.  I never cry when anyone is looking, unless sometimes my husband catches me.  A lot of time he doesn't notice.  I'll put my glasses on so he can't see.  I'll say I have a stuffy nose.  I was thinking, what friend could I call?  It's late and I NEVER call anyone.  I never do.  I did have one friend come to mind.  Someone I've never actually met in person.  But she knows what I am going through because she is going through the same thing.  It's just late and she has a family..... and her own sleeping problems.  Otherwise I would call.

When is this going to end?  It's been 18 months of not living.  NOT LIVING.  I get peeks at life.  Previews..... for a day or two.  Sometimes a week.  But then BAM!  Here I am again.  And I am too sick to get up & bathe & brush my teeth.  My hair is gross and I stink.  Ya, I said it.  It's true.  I've been in the same clothes for 3 days. And for 3 days before that I was in the same clothes.  With stains on my shirt.  Because while I was making meatballs with marinara, my bird was hanging out on my shoulder.  He thought it would be cool to grab the wooden spoon out of the pot & slap the sauce on my boob.  Ya, it stayed there.

A felt good a few days ago & decided I would start exercising again.  My neighbor drove by & said, "Wow, good to actually see you with clothes on!"  Meaning not in PJ's.

I miss my connections.  I just moved here & how will I ever make friends if I don't have a flippin' life outside of my house!?!

Good news is my parents are coming by tomorrow.  I hope I feel better, otherwise having people around can literally hurt (noise, etc).  And on Sunday my old neighbor is coming over for a visit.  YAY!

Ok, I'll try to stop feeling sorry for myself.  I hate it when I do this.  I hate it when I cry.  I feel like such a loser.  I want to go wake up my husband and ask him for a big hug.  My Big Boy (Rover) came over and showed me love.  He heard me sniffle.

Methylcobalamin B12, SubQ vs IM

It matters how you shoot it! I knew that! I just found this online. When you do it in your buttocks fat (Sub Q, not IM), it takes longer to absorb & doesn't get flushed out by the kidneys within 30-45 minutes! And the buttocks is better than arm fat or belly fat! Good news because it hurts less in the butt! Here is a quote:

2 Kids Explaining Lyme Disease

They each got lyme disease congenitally from their mother who unknowingly passed it on to her 2 boys.

Lauricidin

Anybody else taking Lauricidin? Here is their website: www.lauricidin.com

I've been taking it for many months. You have to start slow when you have lyme disease. I am up to 18 pellets a night. The goal dose is 3 scoops per day which I think is about 60 pellets 3x per day. I actually herx on the stuff and I don't usually herx easily. That's why I am going so slow. I just want to hear what others have experienced.

UPDATE:  I just learned that I cannot recover from Lyme Disease without first treating HHV-6.  I know Lauridicin helps to combat viruses, but HHV-6 is not on the list.  However, I have CMV, EBV, & the mycoplasma pneumonia bacteria.  And they are on the list of things Lauricidin can kill.  So I will be more aggressive with my Laurcidin & start upping my dose more quickly.  I took 20 pellets last night.  I will start taking 20 at night & 10 in the am.  Hope I don't herx too much.

iHerb.com coupon code

If you have never ordered from iHerb.com for supplements, you can use my coupon code YAF559 @ checkout & get $5 off your first purchase! Shipping is CHEAP I just paid $2 for shipping on my order & free with $40 or more purchase. Please pass it on.

Protandim

Has anyone ever heard of Protandim?  Someone mentioned to me on Facebook today.  I had never heard of it. Supposedly it's the only proven antioxidant or something along those lines.  Kind of spendy, but I read the reviews on Amazon, & it sounds very promising for the immune system. The only thing I don't like about it is that it's most likely an MLM company. So I am leery.

Please let me know what you've heard about this product or if you've ever tried it. Please leave a comment about your experience.

HARD TIMES

So I've been having some hard times lately.  Adjusting to a much, much smaller house has been difficult for everyone.  But I think we got past it now.  Sold a lot of stuff, which is a good thing since we needed some money.  My husband gets paid in the mail & we forwarded the mail & the company said that they had mailed it to our new address.  Only to get a call from the management company from our old house letting us know that they had a stack of mail for us.  UGH!  Took 2 weeks!  It was a small check.

The stress from the move & not having things unpacked (we still haven't finished our bedroom) had me kind of a wreck.  But hubby, the kids, & I got on it this past weekend & things are good!  We went from 3000 sq ft to 1700 sq ft.  It's hard.  And the kitchen is so tiny.  I have no room for anything!  So we haven't got that part sorted out yet....  I cooked my first meal today though.  Took FOREVER!  I'll post that on my dinner blog tomorrow.

Walgreen's found out they were charging too little for Rocephin so they upped the price from $2.10 per vial to $6.09 per vial!  Thanks Walgreen's employee in Valencia!  So I called my trusty pharmacy & BLESS THEIR HEARTS (my friend Col would say that) they are giving it to me for pretty much their cost @ $5.50 per vial.  I will give this company ALL of my business from now on.  Even the things I only have a co-pay on.  They deserve it.  And to top it off, today, they wanted to send me my rocephin vials (they have three 10-packs now, will order more later).  I told them I could only afford to pay for 1 pack & they decided to ship me all 3 and I can pay them when my husband gets his check.  Now that is dedication to the customer.  I have been a customer of theirs for a long time.

Please check out my new business venture to raise money for my treatment!  https://www.mythirtyone.com/SonyaNelson

A Blog I Found

I found a blog about a young lady named Candice.  She is having an auction HERE on her Facebook page for her blog.  Please check it out.  Great products for everyone & for LymeHeads too!  Also please check out her blog.  She has a great story to tell HERE

I have a job!

After much thought and anticipation, I decided to sign up to be a consultant with Thirty-One Products.  I needed a JOB and since I can't really actually GO to a job, I figured this was the next best thing.  I was the last person to do an product sales company, but this company really made me think.  This could really work.  You can never have too much of this kind of stuff!  And everything is very useful, not to mention cute!  So there you have it.  Please check out my catalog by clicking on the link below.  Then once on my page, you can view the catalog at the bottom left hand side.

If you are in my shoes & trying to save pennies for your medical treatment, I don't expect you to buy anything from me.  But perhaps you know someone that would be interested in my products.  Please take a look.  You can host an online party for me & there are hostess incentives for hosting.  So don't worry if you're broke! Or if you are interested in part time work that you can do ONLINE, feel free to join my team.

http://www.mythirtyone.com/57633/  is my website link.  I am going to see how I can change it to reflect my name.  Probably will buy a domain name.  


Now, back to feeling like crap.  I'll be back to blogging soon.