I spent most of today doing research on Lyme Disease. I feel like I could write a book on the amount I research. All in the name of finding a "cure". I am trying to figure out why people with LD suffer hairloss. My hair started thinning a year a 1 month before I got "sick". My sis in law does my hair & noticed a bald spot that appeared in 2 weeks. It didn't get any bigger & so we didn't think much of it. But then this spring I was under a lot of stress & I noticed some more thinning on top of my head (around my face) & another spot. We got my thyroid & hormones checked, & all appeared ok. We eventually went to a dermatologist who didn't know the reason either & suggested Rogaine. However when we went to go buy it it said not to use if hair loss is patchy. Mine was patchy. That was a waste of a doctor visit.
A couple of months before I got "sick" I was just losing & losing hair. We didn't know why. Then I got sick & eventually diagnosed with Lyme Disease. Unexplained hairloss is a symptom of LD. But then no one can explain why. Maybe I've had the Lyme longer than I thought. Maybe I got it when we went camping at the Kern River in July of '08. We hiked through woods & tall grass. No one else from that camping trip is sick. Hmmmm....
If anyone knows of an herbal remedy or anything that helps with the hairloss. I am all ears! I mean, everyone says the hair grows back & I just chopped off 7 inches! It was looking to limp & thin. Luckily it isn't too noticeable. This is before the CHOP! I will post an after pic when we take one.
While doing my research (I do a couple hours a day) I came across a YouTube video of a segment on Good Morning America. It was a story about a weather girl from Channel 6 News in San Diego that had suffered a battle with Lyme Disease and was now doing better. I then found an article on the stations website that had interviewed a Dr. out near SD that specializes in Lyme Disease. There are not a lot of those docs out there. I checked out their website, called & got more info and made an appointment. They take insurance, but of course they don't take my insurance. Oh well. So I made an appointment with the consent of my loving husband. I will be going on the 23rd of this month. It's only about an hour and a half away. I see the Nurse Practitioner first. And then we go from there. The lady on the phone said that 70% of their patients have Lyme Disease. The docor works for free. But of course I still need to pay. We will see if based on our income they give some kind of discount. WE SHALL SEE. I am looking forward to it. I want to make sure I am doing everything I need to so that the disease doesn't advance. I will also ask which tests are the most important for me to save up for. I will do them in order of importance. If the money situation gets better, I will also see a Naturopath or consult with one by phone that specializes in Lyme. Most of those specialists are more toward the east coast where Lyme is more prevalent.
I have seen great improvement with the Bicillin injections. Although the past week has been difficult because some of my symptoms that I thought were long gone have returned. They are the Neurological symptoms that scare the crap out of me. So they are NO BUENO. Neck stiffness & pain, my knees buckling when I walk, & I'm again "off balance". Plus I have noticed a few heart palpitations. My LLMD, Dr. B thinks I am herxing. I hope so. Keep your fingers crossed. Someone is on their way over right now to give me a "microchip" or whatever it's called to put on my neck & it is supposed to take the pain away. It's the latest MLM craze. They are spendy, let's see if it works! If not, I always have my Ketamine cream & the neck heating bag.